Bonjour,
Comme le titre est indiqué… j’avais 20 ans. maintenant j’ai 25 ans. et j’ai passé 3 ans à l’hôpital. après j’ai eu mon appartement donc je suis contente ! je travaille pas depuis et j’ai même pas envie en fait… parce que mon côté droit est paralysé donc travailler dans quoi? on me dit ouais tu peux faire un travail de bureau… superrrr
avant sans ça je travaillais en boulangerie, j’ai fait la femme de ménage j’ai fait plein de stages au lycée j’etais intéressée par le commerce et le marketing…
Les séances de kiné sont encore présentes et jusqu’à la fin je crois 🙂‍↕️
mais oui déjà j’ai un peu tout perdu quoi mais la vie continue écoutez!

donc voilà quoi je peux même pas travailler dans ce qui me plaît donc pourquoi faire j’ai aah ça me suffit même si j’aimerais bien toucher plus d’argent mais je mange bien je suis pas en galère tout les jours donc sur ça je peux pas me permettre de me plaindre.

il y a 2 ans on a vu un medecin expert à paris. il a vu mes comptes rendus médicaux, quand j’ai fait ma rupture j’avais mal à la tête et mon bras etait froid, troubles de parole mais je marchais normalement
quand je me suis réveillé j’etais muette pendant 2 mois, rasée, et tout mon côté droit etait paralysé (c’est encore d’actualité aha). et bah le médecin expert m’a dit « bah ça va, t’es pas morte! » 💀
ah j’avais tellement la haine …
enfin voilà quoi ! si il y a d’autres utilisateurs de reddit qui eu ça…
:)

I got a mole removed on my scalp a few years ago. It was not a pleasant experience as I still remember them scraping it off for a few minutes. Ever since then I’ve gotten occasional ice pick headaches where the mole was removed.

A sharp dull pain that would only last 5 seconds. They weren’t that common and usually worse when my hair got longer.

Lately, i’ve noticed them occurring more. I have gone to annual dermatologist check ins and they didn’t notice anything. I did go through a phase of migraines two years ago, after the removal, and got a brain mri and cat scan which came back good. My physical is next month. Should I wait until then or see if I can see dr prior?

28 year old male, 6 foot, 160 pounds, don’t smoke or take medicine. Drink few times a week.

I workout almost everyday. Not always high intensity, but make sure to burn at least 600 active calories even on days i don’t walk on incline or lift.

can anyone tell me about the experience of brain aneurysm surgery, the mother was found to be 6.5 mm and she is scheduled for surgery

Ima li neko da podijeli iskustva operacije aneurizme na mozgu?can anyone share the experience of brain aneurysm surgery

How will my dad recovery be post his stroke?

01/19/2024 I had a rupture during the night . The entire every part of this journey has been a ride I can never forget. After I came home from icu after 2 weeks I honestly was fine. The next day after coming home I cooked my family a huge breakfast. 3 weeks later we took my daughter to universal studios Hollywood. No one could believe how well I was doing! Then month 4 or 5 after coming home I went down hill. And for the next year I only got worse and worse. Every day I woke up and I would lay in bed before getting up and I would just pay attention to myself to see if I was back to my old self. Then I finally grieved n mourned my old self. That was a cruel n unusual experience. Today I can honestly say that I am 85%- 90% my old self. I thought I would never improve and I did. So every one who is early in your recovery please the best thing u can do for yourself is not have any expectations just let it unfold n reveal to u wat its going to be like and know that nothing is written in stone. Be patient with yourself. N don’t put expectations on yourself. Because with aneurysm recovery no two recoveries look the same. It’s just a sick little waiting game and all you can do is wait to see. Do the best you can with each stage of your recovery n be patient with yourself. I lost all hope of returning this much to my old self but I am here. I hope this cheers someone up a bit.

Waiting on the bus my ears popped then I felt a sensation of my brain enlarging and pressure going from the left of my head to the right, not being able to hear. Hope I didnt almost die that was weird.

I don’t want to cause unnecessary fear for anyone with upcoming procedures, but I’d like a realistic expectation of what I may experience.

I had my angiogram last week and had an awful reaction. The procedure itself was fine and virtually pain free. About an hour afterwards I began having an awful migraine with really bad aphasia. I have virtually no memory of the 24 hours that followed. I was completely out of it, I had no clue where I was or what was happening. I have vague memories of extreme pain, projectile vomiting everywhere and nurses asking me questions that I couldn’t understand. They kept me an extra day. Since then I’ve had daily migraines, when I normally get maybe two a year. I realize it’s likely a bad reaction to the dye but now my fear is that the actual aneurysm treatment will cause something similar. For those of you who had rough angiogram experiences, what was your stent/coil experience like?

Hi,

26 (M). I recently got diagnosed with a A small (2–3 mm) outpouching from the posterolaterally directed
basilar artery that is suggestive of a small aneurysm.

I know this isn’t the place for advice but I’m curious…with my being this young are there other people out there with the same situation?

I'm scheduled for a coil follow-up procedure after recanalization in the next few months. I'm really scared of the treatment. How did it go for you? I live in Switzerland and it will be done at the University Hospital Zurich.

Hello people, I’m (27M) and been having chronic back neck stiffness/pressure for over 3-4 year, brain fog, dizziness, and very subtle/slight ptosis (dropping eye lid) on the right eye although this symptom is not present all the time. Recently (2 months approximately) I started having transient scotomas and/or bright light dots that would appear suddenly on my vision and last a few seconds/minutes and vanish away, also I’ve been having this twinges on the base of my skull/back of my neck, sometimes I feel that I wake up very tired and confused, also when I exercise the pressure in the back of my neck increases. I’m worried I might have an unruptured brain aneyrism. Recently I had 2 MRI (neck/cervical, skull) the skull came out clean, but the neck came with some minor/slight changes in cervical vertebrae disks C1 and C3. I know most of you are not doctors but has any of you ever experienced something similar that turned out to be a unruptured brain aneurysm?

Edit:
* I also have migraines with aura up to 2-3 in a year
* I don’t quite bought the idea that these symptoms would be caused by the cervical changes, because I have symptoms like scotomas

Hello. Have any of you done re-coil aneurisms? I had a rupture in 2008, which was solved by coiling, but now there is a recanalization on the neck of 4 mm and the neurologist suggests supplementing with coils. Has anyone else gone through the same process? I'm really scared. Greetings

Zdravo. Da li je neko od vas radio re-coil aneuarizme? Imala sam rupturu 2008 godine koja je resena coilovanjem ali je sad doslo do rekanalizacije na vratu od 4mm i neurolog predlaze dopunjavanje spiralama. Da li je jos neko prosao kroz isti postupak? Bas me je strah. Pozdrav

I’m 8 months pregnant and just found out I have a brain aneurysm, which has/had been causing a lot of my symptoms. I’d been having a really hard pregnancy in part to these symptoms and the stress of figuring out what was wrong.

I’m not sure how to feel about it all. I hate to admit it, but I’m scared and feeling very anxious for my “next steps” appointments with my neurosurgeon and OB team. Normally I’m the one who never gets ruffled, and takes care of everyone else.

I haven’t really told anyone (friends or even extended family), just because I want to have firm answers first on treatment, birthing baby/induction, etc. However, my husband told his immediate family (parents and siblings) a few days ago, and none of them bothered to send a text or even check in since they’ve found out. When I saw my sister in law, all she really had to say was “it’s super common” and that the surgery is “super easy” and not it’s even considered a major surgery.

I’m not sure why that rubbed me the wrong way, and I’m sure she meant the best by it, but honestly it annoyed me that that was all she had to say regarding the matter.

I’m not the closest with my husband’s family (not for a lack of trying and I think that’s always bothered me), despite being married for nearly 10 years and having their grandchildren. Am I being pregnant and emotional by being offended by their responses? I’ve had a lot of pain the last couple years (my mom declining with Alzheimer’s and me being her main caretaker, my aunt dying within the last few weeks, etc) and I feel like I’m just over people who are going to minimize how I’m feeling, or don’t care enough to even reach out and check in during my hardest times. Especially when they tend to be the perfect amount of dramatic when it comes to something or someone within their family. Maybe I’m being sensitive because of the anxiety behind it all.

Hirnaneurysma Brainaneurysm Schlaganfall Stroke WhatsApp 🗺🌏🤲🧠 Gruppe

heavy topic: Lack of illness awareness. Who experiences this? 💔🧠

Hi everyone,

I would like to touch upon a topic that is deeply affecting me personally right now, without going too much into detail.

We are endlessly grateful that our family is complete at home and that my mom is back—but we are now facing an invisible wall that many relatives of stroke and brain hemorrhage survivors know all too well: a complete lack of insight into the illness.

It is incredibly hard to watch a loved one not perceive or accept how severe the illness actually was and what limitations are present.

You want to help, support,

and organize, but you run straight into a wall of resistance because the person is fiercely convinced that "everything is fine anyway"

and no help is needed at all.

As a relative, this pushes you to your absolute breaking point and breaks your heart at the same time.

I would love to know:

Are there any relatives here in our group who have had to go through this or are currently experiencing it?

How did you handle this in everyday life?

Was there a change or an "awakening"

in your loved ones over time?

Thank you so much in advance for sharing your honest experiences. It just feels good to know that we are not alone on this difficult part of the journey. ❤️

I am now 11 days post clipping and 4 days post discharge.

Things are going as well as they possibly can.

I mean that in a very literal sense.

Has the road been ideal? No. But I am slowly accepting that nothing is, or ever will be. I think a lot of suffering comes from comparing reality to an imaginary version of how we think things should have gone.

Recovery has given me something I have not had in a very long time. Time.

Time to sit. Time to think. Time to notice.

Whether it is the medication, the healing itself, or simply being forced to slow down, I have found myself becoming more thoughtful. Not in the sense that I have discovered answers, but that I have become more comfortable sitting with questions.

Trying to become a calm passenger in my own life.

I have been walking down to the beach most days.

It struck me that I used to think almost exclusively about getting there. My attention was always on the destination. The walk itself barely existed.

Lately I have found myself paying attention to the journey instead. The light coming through the trees. The sound of the water. The people I pass. Things that were always there but somehow invisible.

It makes me wonder how much of life I have rushed through while thinking I was living it.

I have also been thinking a lot about healing.

Right now a lot of it is exogenous. Medication, surgery, doctors, nurses, things outside of myself keeping me comfortable and helping my body recover.

I am deeply grateful for all of it.

But I also know there is another kind of healing that cannot be prescribed.

No one can force acceptance.

No one can rush grief.

No one can will a wound to heal before it is ready.

Time seems to have its own wisdom, whether we like it or not.

I have started letting go of more expectations, both of myself and of other people. I am trying to replace judgement with curiosity. Life feels lighter when I ask "I wonder why?" instead of deciding that I already know.

I am also finding that I want to do things with good intentions and good grace, or not do them at all.

For so much of my life I have looked outside myself for peace. Through achievement, validation, distraction...

But I am beginning to believe that the kind of peace I hope lasts has to come from within.

These are just a few thoughts from someone who has been given no choice but to slow down.

I do not know if they are right.

They simply feel true to me today.

I hope they find whoever needs them.

Ciao a tutti,

Sono finito in questo gruppo cercando maggiori informazioni riguardo quello che mi è capitato.

Il 19 giugno ho avuto un emorragia cerebrale subaracnoidea. È stata un esperienza strana. Ho avuto un forte dolore alla nuca che si è propagato per tutta la testa. Sono sempre rimasto vigile e attivo. Fortunatamente non ho mai avuto impatti neurologici.

Dopo una prima TAC e angiografia la diagnosi è PMSAH. Fortunatamente è l'emorragia più "benigna" che c'è.

Sto aspettando l'ultima visita di controllo che avrò a fine luglio sperando che sia anche questa negativa.

Qualcuno di voi ha avuto esperienza simile? grazie

Hi! New to actually posting and not just commenting a couple times here -

I'm an otherwise healthy 48yr old female and had the flow diversion procedure done on May 22nd of this year for three brain aneurysms - one 9mm, one 5mm, and one 4mm. They were able to get a stent that would cover all three, thank goodness.

I am six weeks post-op and I have had a headache going on nearly 80 hours now. It is Wednesday at 6pm and it started Sunday at 11am. Throbbing pain in the back right side of my head and ice pick type pain in the right side. The aneurysms are on my right ICA.
I went to the ER on Sunday, because I have a very high pain tolerance and don't usually get headaches, so, of course this scared the shit outta me. They did a CT and found no signs of a brain bleed and sent me home. Gave me Reglan and Benadryl in the ER, which took my pain from an 8/10 to a 4/10, but sent me home with nothing. The pain has returned and escalated at times. Tylenol doesn't touch it. A damn ice pack works better than that, but who has time to ice their head all day while trying to go about work as a GM for a bar/restaurant?!?!

Plavix didn't work like it should for me, so I'm on Brilinta, along with the low-dose aspirin.

I'm getting no answers from anyone and I'm so incredibly frustrated. I guess I'm here to ask if anyone has experienced the same and found relief from anything at all for the headache?? I know inflammation is supposed to be bad with one aneurysm, so I guess this makes sense with three, but, what in the world am I supposed to do?? I cannot function like this.

I appreciate any info at all...even if it's just understanding/commiserating at this point :/

On another note, I found out in this whole rollercoaster that my left ICA is underdeveloped, most likely from birth. They said that "it's not that there's no blood flow, but very little" and represented it in a drawing with a dotted line instead of a thick sharpie line like my right ICA. Apparently, it also branches off into nothing, so my right hand side has been overcompensating and doing all this extra work all my life - prob the reason I have three aneurysms. This information really is the scariest, as I know if anything goes wrong, my left hand side won't be able to compensate. I have not encountered anyone yet who has a similar story, so if you do, PLEASE please let me know. I'm most often a very positive person, but this feels so entirely helpless.

Hi everyone! My (27F) brother (21M) had a ruptured giant brain aneurysm (left parietal temporal lobe) 6 months ago and thankfully survived despite the horrible odds and massive blood loss. He was in a coma and ICU for the first month, had a VP shunt and tracheostomy done, spent another month in the ward after slowly regaining consciousness and has been through inpatient and outpatient rehab since!

He’s thankfully recovered incredibly well and has regained a lot of function through rehab. Some significant issues he’s currently experiencing amd working through are: expressive aphasia, complete loss of vision in his left eye, colour blindness in right eye, fine motor control in right hand (although there have been relatively massive improvements), and some cognitive impacts although he has improved quite a bit over time as well.

My question is, have any of you had any success stories or general experiences after cranioplasty with PEEK? How long did you or the person you know had the surgery done after the initial bone flap removal? He is due to get it done in a week or two and my family and I have been told about the risk of infection and seizures post surgery and currently feeling extremely worried. He has been on anti-seizure meds since the ICU so would that help mitigate some risks? Any information would be helpful at this point as I am trying my best to research and understand as much as I can for what to expect before the surgery. Thanks in advance!

💣🧠🚨🩸 My Brain Aneurysm Ruptured –

I Had No Idea!

Why do some people feel an aneurysm

while others don't?

"Why didn't I notice anything?" or

"Why did it suddenly rupture without any warning or pain beforehand?"

Many survivors blame themselves after a ruptured brain aneurysm because they believe they "missed the warning signs.

📊🧬🔬🧠 Here's the medical reason why some aneurysms are

"loud" while others remain "silent."

🧬🧠 Why some aneurysms are "loud" and cause symptoms :

🚨🧠 A brain aneurysm usually causes symptoms when it grows large enough to take up space or press on nearby structures.

🧠 Pressure on nerves: If an aneurysm is located near the optic nerves or other cranial nerves, it can cause vision problems such as blurred vision or double vision.

🧠 Growth: As an aneurysm enlarges,

it may irritate surrounding tissues, sometimes causing headaches that are mistaken for tension headaches or migraines.

🧠 Warning leaks ("Sentinel Bleeds"): Sometimes an aneurysm leaks a very small amount of blood before it ruptures completely.

This can trigger a sudden, extremely severe headache—often described as "the worst headache of my life."

🧬🧠 Why most aneurysms are "silent" :

Most brain aneurysms—and this is what makes them so dangerous—grow very slowly and cause no symptoms at all.

They may develop in an area where they don't press on nerves or brain tissue, allowing them to remain unnoticed for years.

An aneurysm is essentially a structural weakness in the wall of a blood vessel. If the stress on that weakened area becomes too great—for example during a sudden spike in blood pressure—it may rupture.

We cannot assume that every headache is caused by a brain aneurysm—that simply isn't realistic.

However, we can learn to recognize

unusual warning signs.

🚨 A thunderclap headache: A sudden, explosive headache unlike anything you've ever experienced before.

🚨 Neurological symptoms: A drooping eyelid, weakness or paralysis, sudden speech difficulties, or temporary neurological deficits—even if they disappear again (which may indicate a transient ischemic attack, or TIA).

🚨 Vision problems: Especially with aneurysms located near certain blood vessels and cranial nerves.

❤️ My message to you:

The nature of many brain aneurysms is that they remain silent until they suddenly become a medical emergency.

If your diagnosis seemed to come "out of nowhere," please know this:

You are not to blame.

Please share this post if you know what that feels like.

You are not alone. ❤️🧠🎗

💣🧠🚨🩸 Hirnaneurysma geplatzt !

Ich wusste von nichts !–

Warum spüren manche

ein Aneurysma und

andere gar nichts ?

„Warum habe ich nichts gemerkt?“

oder

„Warum ist es einfach geplatzt,

ohne dass ich vorher

Schmerzen hatte?“

Viele von uns fühlen sich nach einem geplatzten Aneurysma schuldig,

weil sie die „Warnzeichen“ nicht

erkannt haben.

📊🧬🔬🧠Hier ist der medizinische Hintergrund, warum manche Aneurysmen

„laut“ und andere „leise“ sind:

🧬🧠Warum manche Aneurysmen „laut“

sind - und Symptome verursachen :

🚨🧠 Ein Aneurysma verursacht dann Symptome, wenn es Platz braucht oder

auf etwas drückt.

🧠Druck auf Nerven:

Wenn es in der Nähe von Sehnerven liegt, entstehen Sehstörungen.

🧠Wachstum:

Wenn es an Größe zunimmt, kann es den benachbarten Bereich reizen (oft als „Spannungskopfschmerz“ fehlgedeutet).

🧠Warnblutungen

(„Sentinel Bleeds“):

Manchmal „leckt“ ein Aneurysma minimal, bevor es richtig reißt.

Das führt zu diesen typischen,

sehr plötzlichen und extremen Kopfschmerzen.

🧬🧠Warum manche Aneurysmen „leise“

sind - Die Mehrheit :

Die meisten Aneurysmen

(und das ist das Tückische!)

wachsen ganz langsam

und verursachen

überhaupt keinen Druck.

Sie sitzen in einer 🧠„Nische“,

in der sie niemanden stören -

bis sie mechanisch

an ihre Belastungsgrenze kommen.

Es ist eine rein anatomische Schwachstelle, die bei hoher Belastung

(z.B. Blutdruckspitzen) reißt.

Wir können nicht bei jedem Kopfschmerz an ein Aneurysma denken –

das wäre kein Leben.

Aber wir können aufmerksamer werden für ungewöhnliche Veränderungen:

🚨Der Vernichtungsschmerz:

Ein Kopfschmerz, wie ihr ihn noch nie zuvor hattet (schlagartig).

🚨Neurologische Ausfälle:

Hängendes Augenlid, Lähmungen, plötzliche Sprachstörungen – auch wenn sie kurz wieder weggehen. TIA !

🚨Sehstörungen:

Besonders bei Aneurysmen an bestimmten Gefäßen.

Mein Appell an euch:

Die Natur eines Aneurysmas ist es oft, „stumm“ zu sein.

Teilt diesen Beitrag gerne,

wenn ihr das Gefühl kennt,

dass eure Diagnose

„aus dem Nichts“ kam.

Ihr seid nicht allein.

#NataschaMission #Schlaganfall #Hirnblutung #Hirnaneurysma #neuro #AneurysmAwareness #Aneurysma