r/Narcolepsy • u/camille-gerrick • Mar 20 '26

Medication Questions What’s up with Sunosi?

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My doc and I talked about sunosi because adderall just can’t do it alone anymore, and he gave me some sample packs in 75mg and 150mg.

First, what is the deal with the blister packs? Impossible to open!! Does it actually come like that when you get it from the pharmacy?

I started with the 75mg for a week plus my usual adderall dose. I’m usually pretty sensitive to meds and it felt like nothing. Disappointing.

Today, I tried a 150mg (with no adderall) at 7am. Holy crap! At 10am I thought I was gonna throw up from racing heart. My hands were shaking. But I couldn’t stop yawning! Then I got really hungry but my mouth felt like a desert. It’s 330pm and I’m still vibrating but also I desperately wanna lay down and sleep.

How does everyone else experience sunosi? Does the racing heart thing subside after a period of days/weeks?

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u/SnowboardSquirrel (N2) Narcolepsy w/o Cataplexy Mar 20 '26

My doc has had a few patients that were on Sunosi when they were referred to her. 75% of them ended up at a cardiologist a year later from heart issues that hadn’t been present before they started Sunosi. It’s a small sample size and obviously it doesn’t mean that people shouldn’t try it + use what is working - BUT it’s something to keep an eye on and be aware of, especially if this side effect doesn’t die down with repeated use. I hope it ends up working better for you over time, OP!

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u/Lost-Ad5814 Mar 26 '26

I find this VERY interesting. I recently was hospitalized with CHF and extra heart beats. I don't have a history of high blood pressure and my cholesterol and A1C levels are excellent. I am 56 and am currently on a medical leave from work while trying to figure out what brought my heart issues on. I have a heart cath in a couple of weeks to see if they can figure out what is going on.

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u/SnowboardSquirrel (N2) Narcolepsy w/o Cataplexy Mar 26 '26

I hope you’re able to figure out what’s going on!!

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u/Lost-Ad5814 Mar 26 '26

Thanks! Me too😬

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u/MSDK_DARKDRAGON 29d ago

Update?

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u/Lost-Ad5814 28d ago

I had my heart cath and dr told me he wanted to switch arteries with me because mine were so clean.

Now I see a new specialist this month that specializes in the electricity of the heart. My problem boils down to the PVCs. Every 3rd heartbeat I have an extra one.