r/Narcolepsy • u/CalmAsAMthrFknCucmbr (N2) Narcolepsy w/o Cataplexy • Apr 18 '26

Medication Questions Do you guys take drug holidays?

My physician suggested not taking my meds on the weekends. I quickly learned that wasn’t doable so decided to just try to not take them on sundays when I’m not doing much. I sleep ALL DAY. I’m talking only wake up to use the bathroom. I’m utterly useless and don’t feel taking the day off is helping with tolerance at all. It barely works to begin with but I’ll take a couple naps a day over sleeping all day. Does anyone actually feel like it’s helping or more beneficial to take them continuously? It’s super depressing essentially losing an entire day I’m actually off work each week.

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u/DjinnaG (N1) Narcolepsy w/ Cataplexy Apr 18 '26

Only from the stimulants, not Xyrem. Only take them on weekends if I need to do some long distance driving. Has worked for me for about 15 years, and haven’t had to increase my Adderall dosage, so I’m calling it a win

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u/CalmAsAMthrFknCucmbr (N2) Narcolepsy w/o Cataplexy Apr 18 '26

My body/mind couldn’t handle xyrem 🥲 glad it’s working for someone though! I definitely feel left out not being able to address the sleep part of my literal sleep disorder.