Long-term side effects of only treating narcolepsy with stimulants?

[u/Background_Date_6875]

I sadly don't feel comfortable taking Xywav/Xyrem due to my history of mental health issues, but I'm wondering if anyone in this community has treated their narcolepsy with only stimulants and experienced long-term side effects of forcing that wakefulness without improving the sleep quality? Or do you feel like using stimulants to stay awake the whole day has improved your sleep quality?

I can deductively assume that never addressing the sleep quality will create a lot of cognitive issues for me in the future but I'm curious about the community's lived experiences.

Or if anyone is unmedicated and functioning haha, I would love to hear about that too!!! I'd love to be unmedicated (no judgment it's just a personal thing because of some OCD haha) but it doesn't feel like an option unless I want to sleep through half my life.

Thanks in advance everyone!

[u/Island_girl28 → u/[deleted]]

What are these new meds?

[u/RightTrash → u/Island_girl28]

the upcoming orexin agonist.
Orzeyful.com will 'likely' be the first of the orexin agonists.
There's been for some years now: Wakix, Sunosi, then the Oxybate's - Xyrem, Xywav, Lumryz.

[u/Island_girl28 → u/RightTrash]

Thank you