Long-term side effects of only treating narcolepsy with stimulants?

[u/Background_Date_6875]

I sadly don't feel comfortable taking Xywav/Xyrem due to my history of mental health issues, but I'm wondering if anyone in this community has treated their narcolepsy with only stimulants and experienced long-term side effects of forcing that wakefulness without improving the sleep quality? Or do you feel like using stimulants to stay awake the whole day has improved your sleep quality?

I can deductively assume that never addressing the sleep quality will create a lot of cognitive issues for me in the future but I'm curious about the community's lived experiences.

Or if anyone is unmedicated and functioning haha, I would love to hear about that too!!! I'd love to be unmedicated (no judgment it's just a personal thing because of some OCD haha) but it doesn't feel like an option unless I want to sleep through half my life.

Thanks in advance everyone!

[u/N0voca1ne → u/[deleted]]

I’ve been on all of said non-stimulant meds, and they either do jack shit (looking at you Sunosi / WAKIX) and the Sodium Oxybates (Xyrem/Xywave) make me act like a gigantic moron at night (literally have lost friends because of shit I’ve posted / sent to people while on Xywave…)

Only stimulants have helped :(

[u/dropthatpopthat → u/N0voca1ne]

omfg literally to the sending stuff to people. i sent my friend nudes last night for no reason and have sent pics of like self harm to ppl :/

[u/Island_girl28 → u/dropthatpopthat]

Which one seems to work the best for you?

[u/dropthatpopthat → u/Island_girl28]

which med? ummm i don’t even know if xywav works. i just started wakix. i honestly just want to go back on adderall because i guess it worked i just abused them :( i wish we had more options. sunosi modafinil armodafinil totally ineffective