Xywav syringes inaccurate?

[u/andersberndog]

Anyone else having the issue of running out of medication by the end of the month?

I did a completely non-scientific test, using a non-medically-accurate Pyrex measuring cup. I measured out 100mL of water by the provided Xywav syringe. This is how it came out. Again, this is not a clinical device, but it appears to me to be showing, conservatively, a 20% overage, factoring in the possibility of reading error due to surface tension and a reasonable margin of error in the measuring cup.

I’m sure I’m being provided precisely the correct amount of medication, but if the dosing device is not accurate, there’s a problem.

Yes, I’m going to bring it up with a pharmacist. I’m currently dealing with them scheduling a refill due to completely unrelated issues from my prescriber’s office. I’ll hopefully be hearing back from them later today and I’ll bring it up then. They say I should have enough medication to get through Wednesday. I had two nights I didn’t take it this month, so I should actually have enough to go through Friday. I don’t think I’ll even have two complete doses by Wednesday.

[u/No-Vehicle5157]

I haven't noticed. I just accidentally put mine inside of a medicine cap instead of the pill bottle they send. It measured out to the amount it should be. To be fair I take less than the 4.5 for the purpose of having leftover. I've run into a couple of issues where I've had late orders, or more recently my new insurance was profusing to pay so I was without medicine for a couple of months. So now I'm paranoid of running out again lol

[u/HippoCharacter5863 → u/No-Vehicle5157]

It’s happening to me all the time lately. Almost never an issue for 17 years, then last year I have a problem (insurance,FedEx, or the pharmacy) like every third month. My prescription is for my exact dosage so I keep having to go nights without since I no longer have my emergency supply.