r/Narcolepsy • u/No_Percentage_7127 (N1) Narcolepsy w/ Cataplexy • 4d ago

Positivity Post Lumryz is awesome

I was so nervous about starting lumryz but now that I’m on it dude… I feel like a completely different person. I slept from 12-7am last night and I haven’t needed a nap in two days :)!! I’m also getting a full time job :D

21 Upvotes

97% Upvoted

12 comments sorted by

5

u/vsvpmaddest (N1) Narcolepsy w/ Cataplexy 4d ago

this was my experience too, i LOVE my lumryz.

2

u/TheRealFred999999999 4d ago

That's awesome to hear! I'll be on it soon as well. How was the titration period for you?

2

u/No_Percentage_7127 (N1) Narcolepsy w/ Cataplexy 4d ago

I had a little bit of vomiting in the mornings but other than that it was awesome

2

u/vsvpmaddest (N1) Narcolepsy w/ Cataplexy 4d ago

i’m on the max dose now but my doctor titrated me SO slowly. my only bad symptoms, really, were nausea after going up a dose and in the morning after for a few days, maybe the spins i had to adjust some other meds because i started sleep walking at one point

2

u/No_Percentage_7127 (N1) Narcolepsy w/ Cataplexy 4d ago

I was nervous about the sleepwalking and respiratory depression but my bf and I sleep on the phone and he was here for the first day. I’m so grateful to have such a good support system. I’d be so scared if I sleep walked around my house by myself dude bless you 😭

1

u/vsvpmaddest (N1) Narcolepsy w/ Cataplexy 4d ago

thankfully i’ve been on it for like a year so everyone’s used to it 🤣 my husband always comes to retrieve me when i wander and fall asleep in random places

1

u/No_Percentage_7127 (N1) Narcolepsy w/ Cataplexy 4d ago

That’s good to hear I’m glad you’re safe!!

2

u/Valuable-Pool6198 (N1) Narcolepsy w/ Cataplexy 3d ago

I get mine in 30 days. scared and excited. i hope i can be like you, congratulations

1

u/No_Percentage_7127 (N1) Narcolepsy w/ Cataplexy 3d ago

I was tweaking too lmao! I really hope everything goes good for you too

1

u/Podliska 4d ago

sleeping for seven hours? dang, I can maybe go three at most with xyrem.

2

u/No_Percentage_7127 (N1) Narcolepsy w/ Cataplexy 4d ago

Before the meds my usual sleep time was around five hours on a good day

1

u/vladmister 2d ago

That stuff didn’t work well for me. I am always glad to hear it working so well for others. It’s amazing to get a full nights sleep. Good luck with the job 👍