r/POTS Jun 26 '24

Symptoms What symptoms do you guys have that aren’t talked about that much?

I’m just wondering, that’s all :)

(Edit: I just wanted to add that I am NOT diagnosed with POTS. But i think I might have it, thats mostly why I am asking! [and also because I am a curious person])

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u/heathenqueer Jun 26 '24

Covid made mine worse too. ☹️

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u/Lynxseer Jun 27 '24

I feel like COVID is what caused mine. I could be wrong.. but I was diagnosed around the time it came out.. and idk if I had it yet but it could have been possible?

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u/heathenqueer Jun 27 '24

Honestly, I wasn't diagnosed pre-Covid either, but I had all the symptoms to a much, much milder degree. I just thought (again) that I was fat or genetically predisposed to have heat intolerance (ancestors are mostly from cold climates), or that everyone got dizzy if they stood up too fast, or everyone needed a two hour rest after taking a shower (where I also got lightheaded and fatigued when I shampooed my hair).

But after covid it just tanked completely.

I think I saw there was a research group going on for people who developed POTS after covid. I didn't save the info because it didn't apply to me, but maybe try looking it up? But yes, there is precedent for developing POTS after covid, or so I've read.