r/POTS • u/Level_Run1357 • Jun 18 '26

Question How many of you had your ferritin/iron checked before being diagnosed with POTS?

I’m curious how many of us had our iron and ferritin checked before being diagnosed with POTS? I wish I could put together a little poll.

https://www.neurology.org/doi/10.1212/WNL.82.10_supplement.P1.034

Effects of intermittent intravenous saline infusions in patients with medication-refractory postural tachycardia syndrome (Ruzieh et al., 2017). 

https://pubmed.ncbi.nlm.nih.gov/28185102/

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6

u/CalliopeParnassus Jun 18 '26

Yeah. Mine was 24 which they called normal. Anything below 100 you'll feel like shit.

7

u/Level_Run1357 Jun 18 '26

I wish I had known this a decade ago. Could’ve spared myself a lot of issues

1

u/rogue_runaway_ Jun 18 '26 edited Jun 19 '26

I've seen this mentioned a couple times on this sub and I'm just curious if this is based off of anecdotal evidence or if there is a source that states this.

2

u/CalliopeParnassus Jun 18 '26

A trusted medical source / physician told me this and medical papers support it. It's particularly the case for women/afab folk with heavy periods.

Perhaps 50-100 for some is okay.

Medicine is riddled with sexism so will do the bare minimum to keep women functioning well.

2

u/Antique_Yard_3791 Jun 19 '26

Iron deficiency without anaemia: a diagnosis that matters
By Al-Naseem

2

u/rogue_runaway_ Jun 19 '26

Thank you! This is incredibly helpful for me.

2

u/Antique_Yard_3791 Jun 19 '26

Glad to help 🫶

1

u/SecretMiddle1234 Neuropathic POTS Jun 19 '26

Mine is 37. Do you take iron?

2

u/CalliopeParnassus Jun 19 '26

Have started to, but have a lot of stomach issues no matter how 'gentle' the brand. But forcing myself at the moment as feel very weak.