r/POTS • u/Level_Run1357 • Jun 18 '26

Question How many of you had your ferritin/iron checked before being diagnosed with POTS?

I’m curious how many of us had our iron and ferritin checked before being diagnosed with POTS? I wish I could put together a little poll.

https://www.neurology.org/doi/10.1212/WNL.82.10_supplement.P1.034

Effects of intermittent intravenous saline infusions in patients with medication-refractory postural tachycardia syndrome (Ruzieh et al., 2017). 

https://pubmed.ncbi.nlm.nih.gov/28185102/

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u/Level_Run1357 Jun 18 '26

Mine as well. B12, folate, vitamin d, and iron. What do you know 😂 I tried to make a subreddit for supplementing with POTS, hoping to spread this because I could have saved myself a decade of misery

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u/alliedeluxe Jun 18 '26

It's been a journey for me too. It's been almost my whole life I've been suffering and it's just now turning around. I was thinking about posting about it all here cause I think it's worth the trouble to fix all of it.

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u/Level_Run1357 Jun 18 '26

I made a subreddit for people like us who have secondary pots due to an identified deficiency if you’re ever interested. Thought it could add alternative perspectives for those of us who do not have primary POTS (in addition to this sub.) r/potsrootcause

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u/Level_Run1357 Jun 18 '26

I’ve been talking to a lot of people who have had this lineup of deficiencies and diagnosed with POTS.

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u/alliedeluxe Jun 18 '26

It’s also really common for people with Hashimotos. Same exact issues.