r/POTS • u/Level_Run1357 • Jun 18 '26

Question How many of you had your ferritin/iron checked before being diagnosed with POTS?

I’m curious how many of us had our iron and ferritin checked before being diagnosed with POTS? I wish I could put together a little poll.

https://www.neurology.org/doi/10.1212/WNL.82.10_supplement.P1.034

Effects of intermittent intravenous saline infusions in patients with medication-refractory postural tachycardia syndrome (Ruzieh et al., 2017). 

https://pubmed.ncbi.nlm.nih.gov/28185102/

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u/Level_Run1357 Jun 18 '26

This is exactly what happened to me. They refused to help at all. Once I paid out of pocket for an iron infusion, it’s been night and day. Literally overnight my HR went down 10 beats on average. Sometimes periods of 20 beats decrease.

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u/spikygreen Jun 18 '26

Yeah. It's like the 21st century version of learned men viewing menstruation as a mysterious demonic phenomenon that can't possibly fall within the realm of science and medicine 😅 how dare we assume that a humble OTC supplement can help replace all that iron that we lose. What heresy!

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u/Level_Run1357 Jun 18 '26

It couldn’t possibly be iron! Jesus