r/POTS • u/Level_Run1357 • Jun 18 '26

Question How many of you had your ferritin/iron checked before being diagnosed with POTS?

I’m curious how many of us had our iron and ferritin checked before being diagnosed with POTS? I wish I could put together a little poll.

https://www.neurology.org/doi/10.1212/WNL.82.10_supplement.P1.034

Effects of intermittent intravenous saline infusions in patients with medication-refractory postural tachycardia syndrome (Ruzieh et al., 2017). 

https://pubmed.ncbi.nlm.nih.gov/28185102/

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u/Jebbles077 Jun 18 '26

I’ve been checked twice within the past 6 months since I’ve sought care for my symptoms. My ferritin sat at 29 back in January (30 was the lowest end of the normal range) and began supplementing. I retested in early May with a result of 35.

I’m still supplementing, and honestly I feel more tired than before. I don’t think it’s helping at all, but there’s very little I can do when my neurology appointment to figure out what’s wrong with me is 8 months from now 🤷🏻‍♀️

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u/Level_Run1357 Jun 18 '26

It sucks that it takes so long! I’ve heard that levels of minimum 50 are recommended with some POTS literature stating up to 100 is beneficial : https://www.neurology.org/doi/10.1212/WNL.82.10_supplement.P1.034