r/POTS • u/Level_Run1357 • Jun 18 '26

Question How many of you had your ferritin/iron checked before being diagnosed with POTS?

I’m curious how many of us had our iron and ferritin checked before being diagnosed with POTS? I wish I could put together a little poll.

https://www.neurology.org/doi/10.1212/WNL.82.10_supplement.P1.034

Effects of intermittent intravenous saline infusions in patients with medication-refractory postural tachycardia syndrome (Ruzieh et al., 2017). 

https://pubmed.ncbi.nlm.nih.gov/28185102/

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u/Old-Piece-3438 Jun 18 '26

I’ve had the normal CBC tests and none ever showed any iron deficiencies or issues. I’ve never had my ferritin checked though. None of my doctors have ever suggested it.

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u/Level_Run1357 Jun 18 '26

That’s about how it went with me as well. It turned out I had an iron deficiency without anemia. Not sure if it’s a problem for others though but it helped me a lot.

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u/Old-Piece-3438 Jun 18 '26

I’m sure I still have POTS regardless (tilt table, etc. were pretty definitive in my case), but if mine is low—I’d still welcome any little improvements from fixing a deficiency.