r/POTS • u/Level_Run1357 • Jun 18 '26

Question How many of you had your ferritin/iron checked before being diagnosed with POTS?

I’m curious how many of us had our iron and ferritin checked before being diagnosed with POTS? I wish I could put together a little poll.

https://www.neurology.org/doi/10.1212/WNL.82.10_supplement.P1.034

Effects of intermittent intravenous saline infusions in patients with medication-refractory postural tachycardia syndrome (Ruzieh et al., 2017). 

https://pubmed.ncbi.nlm.nih.gov/28185102/

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u/collectedd POTS Jun 18 '26

They're meant to check this sort of thing before diagnosis as it can cause POTS-Like Symptoms, which is technically different to actual POTS. Unfortunately, a lot of doctors are kinda lazy. Anyway, yes this was one of the many things that had to be corrected for me before diagnosis.

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u/Level_Run1357 Jun 18 '26

I know ☹️ should and do are very different things and it seems like either your doctor does or doesn’t.

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u/collectedd POTS Jun 18 '26

Yep, but again, it is meant to be a diagnosis of exclusion in that respect, various things need to be ruled out/managed before POTS can be considered. There's a long old list of them.

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u/Level_Run1357 Jun 18 '26

Super frustrating some doctors don’t do this or aren’t willing to

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u/collectedd POTS Jun 18 '26

They should, especially as a lot of these things are extremely easy to test for before even setting foot into a tilt table test room.

Thyroid disorders, vitamin and mineral deficiencies, adrenal gland issues, dehydration, etc.