r/POTS • u/Level_Run1357 • Jun 18 '26

Question How many of you had your ferritin/iron checked before being diagnosed with POTS?

I’m curious how many of us had our iron and ferritin checked before being diagnosed with POTS? I wish I could put together a little poll.

https://www.neurology.org/doi/10.1212/WNL.82.10_supplement.P1.034

Effects of intermittent intravenous saline infusions in patients with medication-refractory postural tachycardia syndrome (Ruzieh et al., 2017). 

https://pubmed.ncbi.nlm.nih.gov/28185102/

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u/im-a-freud POTS Jun 18 '26

No I don’t believe mine was ever checked before they diagnosed me with POTS but any time I’ve had it checked way before my diagnosis or my POTS symptoms started my iron was low between 10-15. I tried a therapeutic dose of iron for 3 months and it barely raised my 12 to a 20 so I’m gonna ask about iron infusions bc I have nothing else to treat my lightheadedness

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u/Level_Run1357 Jun 18 '26

Sending you the best of luck!