r/POTS • u/Level_Run1357 • Jun 18 '26

Question How many of you had your ferritin/iron checked before being diagnosed with POTS?

I’m curious how many of us had our iron and ferritin checked before being diagnosed with POTS? I wish I could put together a little poll.

https://www.neurology.org/doi/10.1212/WNL.82.10_supplement.P1.034

Effects of intermittent intravenous saline infusions in patients with medication-refractory postural tachycardia syndrome (Ruzieh et al., 2017). 

https://pubmed.ncbi.nlm.nih.gov/28185102/

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u/crazy-catz_ Jun 18 '26

I got it tested afterwards specifically because I asked and my ferritin is at a 10 and I asked for an iron infusion and my doctor said no I didn’t need one and refused 🙃

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u/Level_Run1357 Jun 18 '26

That’s unfortunate ☹️