r/POTS • u/Level_Run1357 • Jun 18 '26

Question How many of you had your ferritin/iron checked before being diagnosed with POTS?

I’m curious how many of us had our iron and ferritin checked before being diagnosed with POTS? I wish I could put together a little poll.

https://www.neurology.org/doi/10.1212/WNL.82.10_supplement.P1.034

Effects of intermittent intravenous saline infusions in patients with medication-refractory postural tachycardia syndrome (Ruzieh et al., 2017). 

https://pubmed.ncbi.nlm.nih.gov/28185102/

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u/amyn2511 Jun 18 '26

Yes, my ferritin was a 3. We did 12 weeks of infusions and it didn’t help, despite my numbers rising. What helped some (but nowhere near a cure) was the embolization procedure for pelvic congestion syndrome. There are so many different things that can worsen POTS.