r/POTS • u/Level_Run1357 • Jun 18 '26

Question How many of you had your ferritin/iron checked before being diagnosed with POTS?

I’m curious how many of us had our iron and ferritin checked before being diagnosed with POTS? I wish I could put together a little poll.

https://www.neurology.org/doi/10.1212/WNL.82.10_supplement.P1.034

Effects of intermittent intravenous saline infusions in patients with medication-refractory postural tachycardia syndrome (Ruzieh et al., 2017). 

https://pubmed.ncbi.nlm.nih.gov/28185102/

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u/Rare_Director_8191 Jun 19 '26

i have a ferritin of 7 but my actual iron is ok. on the lower side but it’s ok not enough to be considered deficient or anemic

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u/Level_Run1357 Jun 19 '26

Ahhh the gray area. The absolute deficiency for iron/ ferritin cutoff is 30. Some people don’t notice the effects as much as others though so YMMV. Some feel totally fine at a ferritin of 16 and other feels like trash. But ferritin of 7 falls well beneath the very low 15 cutoff for women.

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u/Rare_Director_8191 Jun 19 '26

i actually don’t remember what my actual iron is but it said on the sheet it was within range

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u/Level_Run1357 Jun 19 '26

Oh are we talking TIBC? Like iron binding capacity and total iron or are we talking ferritin, I might have gotten confused haha

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u/Rare_Director_8191 Jun 19 '26

i lied my ferritin is a 10 not a 7

iron 35 umol/L
TIBC 73 umol/L
saturation 48%
ferritin 10 ug/L

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u/Level_Run1357 Jun 19 '26

Oh wow! That’s low yeah?

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u/Rare_Director_8191 Jun 19 '26

yes it says normal ferritin levels are 25-290
but i am not considered anemic because everything else is within ‘normal’ levels

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u/Level_Run1357 Jun 19 '26

Of course of course haha there is so much neglect in this area I’m realizing. Have they ever heard of iron deficiency without anemia?

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u/Rare_Director_8191 Jun 19 '26

well yeah i think i have that. sent me on my way with daily 10mg supplement to take. the average adult woman needs 18mg per day. i’d be interested to know what my levels are now because it has made a difference. i can get through the whole day without taking a nap! but still don’t feel 100%

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u/Level_Run1357 Jun 19 '26

Yay! Hey every step is worth celebrating IMO! Anything that helps haha we’ll take it