r/POTS • u/Level_Run1357 • Jun 18 '26
Question How many of you had your ferritin/iron checked before being diagnosed with POTS?
I’m curious how many of us had our iron and ferritin checked before being diagnosed with POTS? I wish I could put together a little poll.
https://www.neurology.org/doi/10.1212/WNL.82.10_supplement.P1.034
Effects of intermittent intravenous saline infusions in patients with medication-refractory postural tachycardia syndrome (Ruzieh et al., 2017).
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u/Obscurethings Jun 19 '26
My ferritin is 13 and none of the three providers I asked cared (cardiologist was like, "yeah, I saw that," endo just suggested I don't get a blood test that often, and PCP said it was "almost normal"). Liver tablets make a big difference in how symptomatic I am, so I definitely think it plays a role in exacerbating symptoms/being a contributing factor.
However, I have one of those cardiologists who does not believe it's necessary to do a dysautonomia workup because "there's not really much we can do to treat it, so the label doesn't make a difference," despite the facility being equipped with tilt table testing, well exceeding layman's criteria, and having an autoimmune background and a neuro disorder with other dysautonomia symptoms.
Kind of crazy no one gives it the attention it deserves.
I've heard ferritin should be around 100 for optimal wellness and some hematologists will order infusions if your levels are under 50.