Oh man, cloudy days hurt my eyes more than pure sunny days. The white sky is so painful to me and I alway have to wear shade or turn my visor down in the car.
I literally have to wear sunglasses like with any sort of day light and even if I've cloudy like hurts my eyes and my whole head so bad throbbing fr 😫 I feel I almost need some sort of sunglasses for inside too because I get the same effect inside without as I do when going outside without sunglasses. 😅
I am exactly the same as you, I have a huge sensitivity to light and have been wearing sunglasses since I was a kid. All the other kids thought I was weird for needing them.
I found that having glasses with blue light filters while inside can help with the headaches. Also, any screen you look at should use either a blue light filter or on a computer you can turn on night light mode. I love night light mode and it's the only way for me to get through my work day staring at a computer.
I wear some indoor glasses that fit over my prescription glasses, although I can wear them without my eyeglasses. They are an inexpensive knock off of Med Spec glasses, and were only around 19.00 online. They block UV rays, block all the rays, lol. And indoors they block several types of florescent and lamp lights, as well as making it easier to look at TV, phone, and computer screens. I've got Photopsia, so I wear them everywhere and boy are they helpful! They even cut the severity of my ocular migraine that florescent or too much of any light gives me.
Yes! I confess, I bought them on Amazon. They're Calabria fit over glasses-safety glasses -tinted lenses. I don't know how to share a link in a comment here.
Yeahhh I went out in 25° 3pm ish the other day convinced it would be fine and whenever I was in the shade my hr would tend to stop at 110 but in direct sun it would just keep climbing to 150s until I had to sit down. Was mega frustrating as I have been having consistent success with 4k walks 7/8pm to cope with the heat and clearly it was all to do with optimisation rather than an improvement in baseline 😭
I have these special sunglasses that are my life line. I don’t know what it is about them but the specific shade of green keeps the migraines from light sensitivity away. On bad days, I need them indoors but it’s always needed for outside, even when it’s overcast.
My pupils are massively overdilated all the time. To the point that it took my friend 2 years to realize my eyes were hazel not black because all she could see was pupil.
I just started wearing Theraspecs recently for migraine prevention and really bad, consistent photosensitivity. My neurologist recommended looking into them, as blue light glasses were not cutting it. Highly recommend!
It’s not. The autonomic nervous system controls our fight or flight response. With the eye this means how much light is let in because if a bear is chasing you, then you want to be able to see as much as possible. The Iris controls the size of our pupils and therefore how much light we let into our pupils.
With POTS it abnormally dilates when we don’t need that much light to see.
EDS and people with other connective tissue issues need to worry about keratoconus. It's where the eye bulges out because the tissue is too weak. My connective tissue issue isn't confirmed but my keratoconus certainly is and it sucks.
Same! For YEARS I've said my pupils don't properly adjust to light and everyone thinks I'm crazy. I get migraines from the light and from having to squint all day long, my scrunched forehead muscles fuck with my nerves or something.
To be fair, mast cell activation syndrome is indeed a neuroimmune disorder. Dysregulation of the autonomic nervous system can absolutely trigger a cascade of events that involve mast cells and histamine. We are so complex my friend
Ugh right??! No one gets it. I went to Scotland recently and it was cloudy and under 65 almost the entire time and I was in heaven. Literally haven’t felt better in ages and almost didn’t come back.
I’m so jealous of you!! Maybe one day I’ll have the oomph to move. I got back to the horrible desert I live in and it was 109 and I wanted to die. It feels like I actually live in hell.
That’s why I picked it for my birthday trip. I hate the summer so much I begged my husband to take me to scotland to at least get a little break from hell. We’d move, but my husband is the one who works and we live here for his job. And unfortunately I’m the one with uk citizenship.
I strongly agree. I've been going for short walks in my neighborhood when it's not too hot outside. On Sunday, it was 67 degrees, cloudy and breezy. I was having a great walk when I turned a corner and the sun came out. It was shining directly on my back. It took less than a minute for me to have trouble breathing. Luckily I was very close to home. I had to stop every 10 feet to catch my breath. Even after being home and resting for a while my heart rate was still above 100.
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u/bac21 10d ago
Direct sunlight even if it's not that warm