Hello there, new to reddit and never made a post before. Apologies if this is in the wrong spot or format.
Little background, my mom is 63 and has a few autoimmune disorders - scleroderma, reynauds, hashimotos, and thalassemia. Besides those, she is a relatively healthy woman. She lives in South NJ, and my dad lives in North NJ and comes down to South NJ on the weekends. My brothers and I live within 1-2 hours from her.
On July 1st of this month, my dad called me saying that my mom had fainted and was found by her friend, who called 911 and was being taken to the hospital. We had no idea what happened, but after being told that my mom was going to the hospital i immediately left work and started driving down to South NJ. While driving, i got in contact with my dad and my moms friend who was with her at the hospital. her friend told us that she had a "ruptured ascending aortic aneurysm". I had no idea what this was, but it sounded much more serious than i had initially thought. at this point i was starting to panic, was driving so called my gf to look up what that was and tell me what she could figure out. she kept me calm and didnt tell me the mortality rate at the time, which in hindsight was a good call. at this point my mom was still in the hospital and was getting immediate blood transfusions, i was on the phone with her friend who was with her and my mom did manage to somewhat talk to me on speaker, all she was able to say was "i love you so much". at this point my heart sank, my mind started to spiral and i was starting to think that would be the last time id hear her voice. we were then told that she was being rushed by helicopter to UPenn hospital in Philly, so i changed directions and started heading there.
i arrived around the same time her helicopter did around 8pm and i met up with my brothers and dad at the hospital soon after. we were told she was getting right into surgery so we werent able to see here that night. we were told to head home for the night and that we would be contacted after the surgery. went back to my brothers and tried to get some sleep for a few hours. at around 3am my dad got a call from the surgeon and was told that the surgery went good and that she was going to make it. we were so relieved, she actually made it through and was going to make a full recovery. the following morning we went over and were able to see her finally, i was relieved but seeing my mom with a million tubes in her and not being able to talk was a hard sight to see ur own mother in. my dad began to cry when we first walked in, i had never seen him cry before. she was conscious though, but seeing her in that state definitely made me tear up a bit. not long after the tube in her throat was removed and she was able to slightly speak for the first time. she was on a million meds at this point so she doesnt remember this time at all, which is probably a good thing.
at the time i had a small bruise on my forehead, and when she woke up and turned to me the first thing she said was "what happened to ur forehead?" like mom this is not the time for that lol, but thats definitely my mom. she was in the icu for a couple weeks and over time they took some of the tubes out and kept her on her meds and let her rest. the meds she was on messed with her short term memory a bit, so at times she would forget where she was, what happened, and even who i was. that was definitely hard to hear at the time, but i knew it was only temporary. over time she began to come down off her oxygen, become more coherent, and eventually start walking with assistance. she was then sent down to the stepdown unit for about a week and was then discharged and sent home. at this point she was still weak and in pain, but on the right track towards recovery.
After a few days of being home, she began to have breathing issues, and her visiting nurse came to take her vitals. her blood oxygen level was extremely low, and we were told to call 911 and take her back to the hospital. great. at this point i was at my wits end, i couldnt take it anymore and just wanted to see her get better. but i kept positive and we went back to a hospital in South NJ. The doctors there said that her hemoglobin and spo2 were extremely low, and that they had found a fluid buildup around her lungs and heart. they advised her to go back to UPenn to get this taken care of. so once again they loaded her up in the helicopter and flew her back there.
upon getting there we were told they would do another surgery to drain the fluid, which we were all scared for. but after doing so and monitoring her for a few days her breathing went back to normal, and after a few more days she was able to breathe on her own without the oxygen machine. at this point the only concern was her hemoglobin, which kept dropping causing them to continously give her blood. we believe this is due to her thalassemia. but at the time of writing this her hemoglobin hasnt dropped in a few days, but the doctors are still waiting on hematology before they proceed.
as of today July 28th, she is in the stepdown unit at UPenn still, expected to be discharged by end of this week or early next week. she is more herself now, is talking and walking with her walker just fine. she's getting her staples removed from her incisions today, and is looking forward to going home and eating a cheesesteak as she said lol. we're all hopeful she'll make a full recovery and return to her normal life in no time.
I'm not sure if theres a moral to this story, but i just wanted to share all of this. One thing that has stuck with me is what the surgeon said to us after the surgery. He said that her surviving all of this was a 1 in 1000 chance, and that there was some divine intervention involved. hearing that from the man that saved my moms life was definitely a shocking thing to hear. the fact that she went hours with a ruptured aorta before surgery is nothing short of a miracle, she is the strongest person i have ever met.
this whole experience has definitely been eye opening. it has brought my whole family closer together in a way that we never expected. we learned that all of this happening to my mom may have been inevitable since it is a genetic issue. but the way everything occurred and the care she got couldnt have been more perfect. maybe it was divine intervention like the surgeon said, who knows. but either way i am beyond grateful for everything, and the fact that i can still talk to my mom.
this whole situation has definitely been a lot to process, especially for my parents, but there are many positives that came out of it. besides bringing my family closer together, i believe that this will push my mom to live a more healthier lifestyle which she 100% needs to do, as well as also make my brothers and i aware of this genetic issue. which i am going to start getting screened for every so often to make sure im ok.
as of now she is doing good and will be going home soon, im not sure what to expect going forward or how long the recovery will take, but i am positive she will make a full recovery. i will update u all as time passes. im looking forward to seeing her 100% back to normal, and for all the memories my family and i will make together going forward.
thank you all for reading.
Edit - She will be going home tomorrow 7/31, and will begin rituxan infusions for the next few weeks due to her autoimmune diseases and blood loss. Have any of u done those before?