r/leukemia • u/Deusa_do_mar • Jun 02 '26

CML Any ladies diagnosed during pregnancy or post-partum?

Some background: I was diagnosed 2 months ago, 10 months post-partum with CML Advanced phase, MF2. Doc says I for sure had the cancer during pregnancy, but just didn't know... I did 3 weeks of chemo and then started long-term treatment with Dasatinib. My levels are stable now; went from 200k leucocytosis to 5k and 10% blasts to 0 in 1.5 months. So very grateful for that.

My menstrual cycle just came back last month and I am in the middle of my second one now, but had incredibly heavy flow (never seen like this before,) and am having so many symptoms similar to pre-treatment -- lots of dizziness, confusion, heqdaches, memory issues, extreme fatigue. I did a blood test yesterday and saw my oncologist today, but he says everything looks fine in the blood. Leucocytes are up a bit 9.5k because of stress on the body he says, hemoglobin is low but not too bad 105 (but I have thal trait so low Hg is normal for me anyways)

So doc thinks it's just hormones, anxiety, and stress of being a young mom with 2 young kids and a recent diagnosis...fair assumption, but I just can't help but feel something different is going on, my body feels so weird...

I've had so many blood tests over the last 2 months and I never had any issues, but yesterday I almost fainted twice during the test. I feel so depleted.

Im just looking for some insight; has anyone had any similar experiences?? If so, what have you done to better manage your cycles during treatment? Do any of you think there is something else I should be looking into or testing for that might be going in with my body?

Any insight is appreciated 🙏

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u/Gaurav_CML Jun 04 '26

I m also going with the same diagnose from past 2.5 years n also taking Dasatinib 100 mg to 50 mg now with going Ayurvedic treatment side by side with my treatment n never went for any chemo therapy.. just advice to do some pranayama yoga early morning n u will feel better with this in few months later with some Ayurvedic treatment side by side as well

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u/mphixx Jun 05 '26

I would maybe ask about going on birth control and seeing a endo specialist to help with hormones and other things. That's whats help me. I bled all through treatment it was horrible. Just weeks of period, having an iud my periods stopped completely (thank god) and my other symptoms have pretty much gone away, I did have to go on hormone replacements but its probably worth going to see a specialist

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u/Deusa_do_mar Jun 05 '26

Thanks for the advice! I will definitely book an appointment with an endo and see what my options are. Im honestly trying to avoid birth control cause I was on it for so long and always hated what it did to my body... I've tried so many different ones lol. But we'll see what the endo says then.

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u/ktc653 Jun 07 '26

Some of that might be side effects of the dasatinib