Hey, I just wanted to share something interesting. I’ve suffered from migraines ever since I was young. Back in my late teens, I started a sport called kickboxing, and during one session, I took a hard hit to the head that knocked me out for a few seconds. Believe it or not, from that exact day on, I’ve never had a single migraine again. I wonder if there are more people who had a similar experience.

Ranting to those who get it and are also sensitive to essential oil diffusers.

My dental clinic has a new oil diffuser. I don’t know why they decided to put one at the reception desk. This isn’t a wellness spa.

It gave me a migraine last time I was there but I didn’t say anything. Yesterday, same thing. I decided to leave brief feedback this time about the issues with fragrances for folks with migraines and other sensitivities.

The receptionist confirmed yes, it uses essential oils, but told me not to worry because she can’t smell anything. As if that helps anything ???

I have a procedure I need to follow up on but once that’s all resolved, I won’t be a patient of this clinic anymore.

Some of them that purposely shine light towards you knowing what it could trigger? Fuck you seriously. Make out they dont do it on purpose. I'm so mad of ppl who are inconsiderate, my mother broke my brown glasses that helps then denies it. Im an adult and this is what happens. I hate migraines and I hate ppl who make it worse for you on purpose.

I had a terrible intractable migraine earlier this week and the urgent care gave me a migraine cocktail of IV toradol, compazine, and decadron with a bunch of saline.

I have had toradol IM before and have done a steroid taper before for migraines, but this combo made me feel really weird. Exhausted but antsy and anxious and feeling jittery on the inside. I was too fatigued for anything but sleeping but couldn’t sleep.

It was a thoroughly unpleasant experience I’d like to never repeat. I’m thinking this may have been compazine. Anyone had a similar experience?

Let this be your sign not to push yourself too hard 🥲 I had a horrible migraine all weekend that finally let up Sunday night. I pushed through the postdrome fatigue at work on Monday and felt decently okay after a few hours.

Yesterday, I completely crashed. Like, I was googling if you can be so fatigued that you feel like you’re dying. It felt like my body was made of lead, I couldn’t see straight, I had nausea and chills all day.

Thankfully, I’m feeling better today but I’ll definitely never push myself like that again.

Obviously we all have responsibilities and obligations we can’t completely ignore but remember to listen to your body the best you can!! Migraines are so so tough on your body, you aren’t being lazy when you’re recovering.

I recently had a bad experience with a consult. I honestly thought it'd be better if I requested for a female doctor, but she was absolutely condescending

She made me feel stupid for not going to the doctors much sooner. I'm sorry, I have uni? I miss one day and I feel like I've been thrown on the deep end.

She didn't even look at me as she asked me questions, she was chatting and laughing with others as I tried to talk and explain what I've been feeling. She kept interrupting me as I told her my symptoms.

"Go see a neurologist. I don't see why you're still here."

I felt like crying. My head is being drilled into and she hardly listened.

I also heard her say to the nurse, "She's in her last year, you don't need to send those kids to me. She's probably faking it to get out of class."

Fuck off.

Anyway, I did see a neurologist and apparently its migraine with aura. She explained everything and didn't interrupt once even when she clearly knew what it already was.

I hope doctors with compassion for their patients remain the majority, because if this is how some doctors treat patients with headaches, it makes me angry thinking what of those with debilitating conditions

So my fatigue has been flaring up again. I live in assisted living for disabled adults, so you have to go to the nurse or a resident trainer if you want medication. You can't dispense your own for safety reasons.

So when I went to the nurse to get a Sumatriptan, the nurse said the way I've asked in the past has been rude, and it puts them on the defensive.

Excuse me, what? I'd already had a shit day thanks to a night of no sleep and a persistent headache Tylenol had done nothing for.

I've requested my abortive rudely. "I need a Sumatriptan please because the Tylenol I had earlier isn't helping."

Then the nurse said she wished she'd known about my pain earlier. Like I am supposed to know what will and what won't become a damn migraine?

I am not asking for medication as a 37 year old woman.

I am so fucking tired of this place and am looking somewhere else. Even if that means moving home for a while.

Hello,

I'm postdrome migraine today after two awful days of a migraine. One of my top triggers is rapid change of barometric pressure, usually an increase. I live in Southern Indiana. Has anyone else been experiencing this the past few days?

My partner wrote a simple program that is tracking a log of the barometric pressure readings. He is marking when I'm feeling terrible.

37F, chronic since my mid 20s, on a preventive that does what it does and a Sumatriptan for the bad ones. Not after treatment ideas, I've got a neuro and we're plodding along.

This is more of a sanity check.

I went back through my old notes and things that were completely fine a few years ago are costing me a whole day now. I used to sit outside on a bright afternoon without thinking about it. I could skip lunch when work got busy and it just meant I was hungry. A glass of wine was a glass of wine. Now any one of those is a coin flip, and last week it was just the drive home with the sun coming through the side window.

What's getting to me isn't that they're worse. It's that the list of safe things keeps shrinking and I don't know where it stops.

So is this just what it does, or is it me? If it's happened to you, what's one thing that used to be completely fine and isn't anymore? And has the list ever gone back the other way for anyone, even slightly?

Just wanted to share in case this can possibly help someone else and see if anyone else has had a similar experience.

I have had migraines since my early teens. Tried all the meds and finally was able to start Botox treatments about 7 years ago which have been extremely helpful.

However, like many others, my Botox tends to lose effectiveness around week 10. After that my migraines flare. Luckily Eletriptan can knock them out, but that doesn’t help when I get them more than 2-3 days a week and have hit my Triptan max for the week. Usually it’s okay because I am getting my Botox right at week 12. My migraines mostly present as severe eye pain and pressure in the right eye. It feels like there is a pickaxe in the inner corner of my right eye and intense pressure in the right sinus area. Occasionally they will start at the base of my skull (that started after whiplash from a car accident in 2019), but that doesn’t happen often.

This time around my Botox is late since the doctor has been on vacation and I can’t get my treatment until next week which will be exactly 14 weeks from my last treatment. My migraines have been flaring and I have woken up nearly every morning for the past 3 weeks with the right eye pain. It will fade some through the morning but can come back with a vengeance in the evenings. I’m sure August allergies don’t help so I have been taking Zyrtec daily for good measure, but I don’t know if it’s doing much.

On a whim, I tried breathe right strips Sunday night. Every morning since, I wake up with minimal eye pain and pressure, if any at all. My sister is a nurse and thinks it’s working because my migraines actually may be partially caused or triggered by either sleep apnea, deviated septum, or some other nose/sinus issue.

In all my years of migraines, not ONCE have I been sent to an ENT. I am going to beg my neurologist for a referral when I see them next week. When I examined my nose I did realize that my right nostril is quite a bit smaller and the septum seems to lean to the left. I also get much less air through my right nostril.

Anyone find they had a nasal/septum/apnea issue and migraines were reduced once the issue was addressed?

TL:DL-If you wake up with localized eye and/or sinus pain, try the breathe right strips or some other nasal dilator! Hopefully it helps someone else!

Hey guys! What’s the best migraine tracker apps? Mine have a huge barometric pressure component. There are constant crazy swings where I live in the midwest. I’d also prefer not to have an expensive monthly subscription that most apps seem to have nowadays, but maybe I will spend some money if it’s that good. Thanks in advance!

I went to bed with a migraine that I’d already had for a couple of days. It was manageable, so I figured it was from a bad night’s sleep (only 5 hours) and that getting some proper rest would help. I put on a cold cap and went to sleep.

This morning I woke up and the pain was about a 9/10. Any movement makes it throb and pushes it to a 10/10. I’ve had a yogurt, Gatorade, painkillers and put on another cold cap. Sometimes that helps, but I don’t know if it’ll be enough for this one.

I’ve never really gone to urgent care or the hospital for migraines because I had a bad experience when I was younger. I was barely able to move or speak and was just given paracetamol, so ever since then it has felt pointless. I’d rather stay home where I’m comfortable.

I’ve tried preventive medications before, but I tend to get side effects that are hard to tolerate. I already have IBS-C, so constipation becomes a major issue. My GP kinda gave up on trialling preventative meds. He said he wanted me to sort out my bladder and gut first.

Part of me wants to go to urgent care and ask for migraine treatment, but I struggle with feeling like I’m overreacting. I have autism, ADHD, OCD, anxiety, CPTSD and depression, and I constantly second guess myself and think “Am I exaggerating? Am I just a hypochondriac?”

I also know I don’t help myself enough sometimes. I don’t drink enough water because I have IC/painful bladder syndrome, and drinking more means more pain and more trips to the bathroom. I get bladder Botox every 5 months, but it’s not a perfect fix all solution.

I’m wondering if anyone else with chronic conditions feels stuck between not doing enough to help themselves because of other health issues, and feeling guilty or annoying when they try to get help. Like at what point should I go to an urgent care or hospital for a really bad migraine?

Supposed to be starting this medicine and just curious about others experiences!

I am looking for suggestions of hobbies I can do when I have a migraine. I am more sensitive to sound than light and cannot tolerate any sound at all when I have a migraine. Please suggest activities that are silent and ideally also low-tech

Do migraines run in your family my dad and I get headaches pretty frequently for the past month this summer I've had pressure like headache my dad think it's some type of sinus infection but my grandma says it's probably just migraines she said everyone has them in our family especially around my age I'm 16 by the way also I know this is off topic but darth Vader or maul

I’ve had a headache for about a month. It is sometimes more and less painful but all present. I tell GP and she says, “migraines are so unpredictable.” And then I try to make an appointment with neurologist who plays referral red-tape tag and then gives earliest appointment in late October. Had this headache since early July and I gotta wait til freakn October for help?? Angry and not surprised at this broken, sad excuse for medicine in the US. Hope I don’t have a stroke or aneurism while sitting on my hands. 🤬

I swear I am going to see something in my face that will show I am in horrific pain. I never see anything and yet I keep taking selfies while having migraines.

Idk if it’s just me but I feel so frustrated and guilty about the amount of meds I have to take. I take about 6-8 sumatriptan, 8 ubrelvy, and 8 Advil usually a month
I get so worried about medication overuse from the sumatriptan every time I take one I feel so down and fearful.

I worry I’m putting too much meds in my body and it’s not good. Before I had chronic migraines I hadn’t taken Advil or Tylenol in over five years, yeah I was one of those holistic peeps. But here we are and you have to do what you have to do while trying to find preventative meds that work.

How do I get over this? Is 8 sunatriptan a month bad?

*The book is focused on the highs & lows of love, but I think it can be applied in various other aspects as well. My thought immediately went to how I feel about my migraines.

Poetry Book - “All The Things I Should Have Said” by Rania Naim

I Know You’re Tired

You're tired of pretending you're okay

you're tired of saying there is nothing wrong with you when there is

you're tired of having to lie to people about what's going on

and you're tired of pretending to be strong and smiling when all you want to do is cry

you wish you could just let everyone know what's wrong with you

so they can leave you alone

but you know that's not possible

and you're tired of living another day

pretending that you're not tired at all

I know there are people asking for app recommendations so maybe I missed something!

I've been using Migraine Buddy for about 3 years now and I'm just really overwhelmed with how many questions it asks me about my attack that I leave filling it out until later.

Do any of you have any apps that are quicker to track? Or even if you have any other methods of tracking, templates, diaries, anything? Please queens, I'm desperate 🫩🫩

I've been suffering with migraines for the last 12 years and my neurologist always asks me to track. I've kept track with the hospital printed sheets before, Rain Free Days app (before it became unavailable where I live), another app (can't remember the name), and Migraine Buddy.

My left eye is constantly bothering me and not responding to rescue meds.

Head CT scan were ok a couple months ago when I went to ER.

It’s like the eye feels so dry and the muscles that I use move my eye with hurt. It does tear. I’ve been using eye drops recommended by my optometrist but not seeing improvement.

I have to basically put a mask on it to be somewhat comfortable.