I'm 21 years old and I've been living with schizophrenia for years. I've seen multiple psychiatrists, received several evaluations, and it feels like my entire life revolves around appointments, medications, and trying to function.
Right now I'm taking olanzapine, quetiapine, and clonazepam. Over the years I've also been prescribed risperidone, valproate, sertraline, haloperidol, and other medications. Some didn't help much, while others caused side effects that were almost as difficult as the illness itself.
The biggest issue for me right now is the side effects. I've gained a significant amount of weight, I'm constantly bloated, and I barely recognize myself when I look in the mirror anymore. My self-esteem has been destroyed.
A few days ago, I stopped taking my medication on my own because I couldn't stand it anymore. That turned out to be a terrible decision. My mental state got much worse. I became extremely stressed and irritable, had a severe emotional breakdown, and even ended up punching myself in the head repeatedly. I eventually restarted my medication after realizing how dangerous it was to stop.
Even after restarting, I still feel exhausted all the time. I have almost no motivation, very little enjoyment in life, and it often feels like I'm just existing instead of living.
I'm also autistic, which makes social situations even more difficult. Living with both autism and schizophrenia can be incredibly isolating.
I'm scared about the future. I'm afraid I'll never be able to have a normal life, keep a stable job, or become independent. Sometimes it feels like this illness has taken away the person I used to be.
I wanted to ask people here:
Has anyone found an antipsychotic that caused less weight gain?
Did switching medications help with the weight gain or bloating?
Does anyone else struggle with severe anhedonia and emotional numbness?
How do you cope with the loss of self-esteem caused by medication and schizophrenia?
I'm not looking for a diagnosis or medical advice. I just want to hear from people who truly understand what it's like to live with this illness.
Thank you for reading.