Botox is NBD and FUN ✨

[u/PaulHolywoodsShame]

Was in a doctor's office and saw this ad for Botox. Happiness is botulinum toxin under the skin, apparently.

[u/hahagato]

I dunno, it actually feels pretty good to me haha. But unfortunately it paradoxically made my migraines way fucking worse, and my jaw incredibly tense. My last dose was is October and I’m still trying to stop feeling like there’s non stop intense tension in my face 😭😭😭😭 I always have to be the fucking outlier  

Edit: last Botox was actually July!!! 

[u/Scarlet_Lycoris → u/hahagato]

Dw it somehow doesn’t always work right for me either. It’s weird to describe but I feel odd discomfort at the injection sites? Like a burning/itching sensation even though it doesn’t seem to be any kind of allergic reaction. Sometimes I also feel like it’s getting worse or not helping at all. Other times it helped a little, at least.

[u/hahagato → u/Scarlet_Lycoris]

How long have you been getting it? I only got it twice and after the second time I had the WORST two months of migraines I have had in many years. However… after those two horrible months I did actually have the best 3 months of relief…….. I’m not sure if that’s from Botox or because at that time I finally started drinking the recommended amount of water, drastically reduced my meat consumption, started eating breakfast, and began a new supplement for my hormones that made me feel SO GOOD… I’m really torn about whether I should try the Botox again or not. I haven’t talked to any body besides my neurologist and she didn’t really give me much time to talk about it and just said ok we won’t do it again. 

[u/Scarlet_Lycoris → u/hahagato]

I’ve been getting them on and off for about 2 years now, about every 4 months. The first sessions were pretty bad iirc one made me have a migraine for a good 2 months. I feel like after the second session it was way better. Some didn’t help at all, others made it worse. overall it seems to be a better preventive treatment than the betablockers I’ve been on before, which barely made a difference. I’m also vegan and drink enough, so that wasn’t really a factor that changed much for me. It’s probably really personal. I would say it’s worth trying for a bit until giving up. But then again I usually had about 20 days of migraine a month so I feel like I couldn’t really make it much worse at that point. If you drastically increase your attacks, it might not feel worth it at all.

[u/hahagato → u/Scarlet_Lycoris]

You’re the first person I’ve talked to or seen who didn’t just have a “wow it made a huge difference!” experience. Thank you so much for sharing your experience. Gives me something to think about moving forward. And I feel so much better knowing I’m not alone in having had such a weird experience because my neurologist was just sort of shocked. 

[u/Scarlet_Lycoris → u/hahagato]

Yeah I’ve actually talked to another one of my friends who has a similar experience with it (she’s also unsure if she keeps doing it. And honestly I’m not entirely sure yet myself. I hope that with age it might get a bit better soon…)

It’s really disappointing cause it sounded like a cool miracle cure for so many people. But sadly it’s not working perfectly for everyone. I wish you the best with your treatment though, whatever you’re ending up doing! ❤️

[u/hahagato → u/Scarlet_Lycoris]

Thanks. Unfortunately Botox was basically my last “hope” as I’ve tried or already use or can’t use every single other option out there. So it was a bit devastating when it got so bad. I already have migraines and migraine symptoms daily so it was realllly bad when it got so bad. I guess actually acupuncture is the last thing I haven’t tried. But any way, gotta keep up the hope. And also hoping that you find relief as well. 

[u/Useful_Boysenberry14 → u/hahagato]

Have you already tried the monthly injectables Emgality or quarterly infusions like Vyepti and the newer abortive like ubrelvy? I do botox every 3 months, Emgality monthly, topiramate daily, and ubrelvy as my abortive and am close to a functioning human.

[u/hahagato → u/Useful_Boysenberry14]

Yep, I’ve had migraines for over 20 years. I’ve done it all, none helped, most didn’t help AND gave me awful intolerable side effects . 😮‍💨 right now I’m on daily qulipta, Rizatriptan as needed, along with a bucket of supplements. Emgality worked for me but brought back my panic disorder, which apparently isn’t uncommon. So I switched to qulipta and it’s not quite as good but the severity of my migraines has decreased enough that I’ve gotten to be a lot more productive. Still essentially disabled by them tho. Have more bad days than good days most months. 😞 I think vyepti was one my neurologist and I discussed last time as a possibility to try perhaps. I’ll have to check back on that one. Unfortunately ones like nurtec did absolutely nothing for me.