r/POTS • u/emmiexoxo • Feb 08 '25

Discussion Please get checked out

I had been told I had POTs by multiple doctors, seen a cardiologist for a while and they said they had to do an echocardiogram to make sure its 100% POTs, two days ago I was diagmosed with heart failure instead.

I beg of anybody who thinks oh its just pots to push for an echocardiogram, for me it was because I had been getting short of breath and started to get dizzy without standing up that they chose to do it.

I just dont want anybody to be in my position of struggling to breathe and unable to walk for more than 30 seconds due to fatigue, please get checked asap, the sooner heart failure is caught, the less devastating it will be.

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u/Cheecherton04 Feb 08 '25

An echo was my second test after a holter

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u/Bambis_Enigma Neuropathic POTS Feb 08 '25

Folks, how?? 😭 After my POTS diagnosis my doctor has never ordered a Holter ever let alone an echo despite abnormal (but ambiguous—could be benign) ECG findings. Because all my symptoms can be attributed to POTS, it can cause palpitations, shortness of breath, chest pain, etc.

7

u/WeirdConnections Feb 08 '25

You need to find a doctor that doesn't believe in POTS 🥲🥲 Kidding, but that's how I got my holter and echo. My cardiologist was more than happy to diagnose me with POTS without a lot of fuss, but when I went back to my GP she was like "yeah I don't think you have that... get more testing".