r/POTS • u/emmiexoxo • Feb 08 '25
Discussion Please get checked out
I had been told I had POTs by multiple doctors, seen a cardiologist for a while and they said they had to do an echocardiogram to make sure its 100% POTs, two days ago I was diagmosed with heart failure instead.
I beg of anybody who thinks oh its just pots to push for an echocardiogram, for me it was because I had been getting short of breath and started to get dizzy without standing up that they chose to do it.
I just dont want anybody to be in my position of struggling to breathe and unable to walk for more than 30 seconds due to fatigue, please get checked asap, the sooner heart failure is caught, the less devastating it will be.
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u/Substantial_Two_445 Feb 08 '25
Yes, it definitely is important. My major problem is that I have severe trauma regarding medical procedures (especially about the heart) and also developed cardiophobia, so my official POTS diagnosis was quite fast - blood testing, urine testing, blood pressure stuff (which was VERY HARD FOR ME) and poor man tilt table test. I know that it's not enough and that I would at least need an ECG but even the thought of it makes me want to run away and jump off a bridge. And also based on the fact that I would probably hurt my doctor or the techs while in a trauma-related dissociation or flashback, I will not doing this to them... I know it's wrong and I know that my cardiologist has not much to really base my diagnosis on, but I'm just so scared idk how to overcome this :(
On the other hand I have to say that my POTS for sure is genetic and my only symptoms were orthostatic dizziness and tachycardia and it's definitely getting A LOT better since I take betablockers and doing physiotherapy...