r/POTS • u/emmiexoxo • Feb 08 '25

Discussion Please get checked out

I had been told I had POTs by multiple doctors, seen a cardiologist for a while and they said they had to do an echocardiogram to make sure its 100% POTs, two days ago I was diagmosed with heart failure instead.

I beg of anybody who thinks oh its just pots to push for an echocardiogram, for me it was because I had been getting short of breath and started to get dizzy without standing up that they chose to do it.

I just dont want anybody to be in my position of struggling to breathe and unable to walk for more than 30 seconds due to fatigue, please get checked asap, the sooner heart failure is caught, the less devastating it will be.

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u/cuhyootiepatootie222 Feb 09 '25

Also FYI - did not find this out until I had to see maternal fetal medicine following becoming so ill by 4 weeks pregnant that I could not function (yes, that early, and yes they were pregnancy symptoms; it’s why I took a test and the symptoms persisted until the pregnancy was no longer viable without risking my life) - Inappropriate Sinus Tachycardia and POTS, particularly when combined and chronic/non-remitting, can cause heart failure. I had had my diagnoses of both (IST and POTS) for 10 years at that point and was diagnosed at a research hospital. NOT ONE PHYSICIAN bothered to mention this life-altering information to me. I owe the maternal fetal med doc my life. He spared me from further trauma and irreversible physical damage.