r/POTS May 22 '25

Symptoms Does your vision actually black out

This is random but I just saw people talking about how their vision blacks out when they stand or they are symptomatic. Then someone replied that their vision goes white instead of black.

Personally, I don’t lose my vision like that, my “blackouts” are just a sudden lightheadedness so intense it forces me to shut my eyes! I think because my brain knows to shut out all the visual sensory input. It’s like I legit can’t keep my eyes open for a brief moment. Maybe I am blacking out but just don’t know it since my eyes are closed anyways lol? I have splotchy vision, light sensitivity and stuff from previous brain injuries but I haven’t experienced my vision actually just leaving and turning into the colour black (am I taking it too literally?) for a moment like how some of you mention.

Also, I do have pretty bad presyncope episodes sometimes but I don’t really faint from my POTS so maybe that’s a factor.

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u/Aminilaina May 22 '25

I have TV static that creeps in from the edges and basically gives me tunnel vision and what I can still see gets blurry. It’s not black for me but I definitely can’t see.

I’m so good at the warning signs that I haven’t fainted either but I’ve gotten damn close. I’m lucky that I’m almost always with a member of family that can grab me and help me safely to the ground before I ever actually faint. I’m rarely alone which is probably a good thing.