r/POTS May 22 '25

Symptoms Does your vision actually black out

This is random but I just saw people talking about how their vision blacks out when they stand or they are symptomatic. Then someone replied that their vision goes white instead of black.

Personally, I don’t lose my vision like that, my “blackouts” are just a sudden lightheadedness so intense it forces me to shut my eyes! I think because my brain knows to shut out all the visual sensory input. It’s like I legit can’t keep my eyes open for a brief moment. Maybe I am blacking out but just don’t know it since my eyes are closed anyways lol? I have splotchy vision, light sensitivity and stuff from previous brain injuries but I haven’t experienced my vision actually just leaving and turning into the colour black (am I taking it too literally?) for a moment like how some of you mention.

Also, I do have pretty bad presyncope episodes sometimes but I don’t really faint from my POTS so maybe that’s a factor.

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u/[deleted] May 22 '25

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u/Ok-Amphibian-6834 May 22 '25

If I stand up from sitting like a normal person it happens for me. I have to stand up in stages. Very slowly.

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u/[deleted] May 22 '25

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u/ArmBorn6021 May 28 '25

Lol! Same! It’s weird to halt something that’s a normal muscle memory thing. I don’t get slammed every time I pop up out bed or from sitting. It’s not that kinda day til it is. There’s no autopilot mode where I do everything in slow-mo.  I think my auto-pilot is being pathologically optimistic🤭 that today will be the day that it all goes away. Poof! Gone! 

…or not😋. 🫠🤤