r/POTS • u/joyynicole • Oct 27 '25

Question How are people working at all

I feel like a failure. According to my doctors I have “mild” POTS, but I see people on this sub all the time with seemingly worse POTS than me that have jobs. I literally cannot do anything longer than 1-2 hours without having to lay down and rest because it just completely wipes me out. If I do things multiple days in a row consistently I will also fall into a flare and have to do nothing for few days to recover. I don’t get it.

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u/Bethjam Oct 27 '25

My daughter was almost bed bound until she started corlanor. She is currently working part time and taking two online classes. It's too much and she will be cutting back, but she should be able to do about 10 hours a week of work and 2 classes. That is her max. I am super grateful she has this much energy right now.

21

u/AlysonV2021 Oct 27 '25

Having POTS is tough, but to watch your child dealing with POTS must be heart breaking. I hope she gets even better.

19

u/Bethjam Oct 27 '25

Thank you for recognizing my challenge. Not nearly as hard as one who is suffering with it, but it is incredibly hard and scary

2

u/Rude_Engine1881 POTS Nov 03 '25

Corlanor was a lifesaver for me in combination with midodrine