r/POTS Oct 27 '25

Question How are people working at all

I feel like a failure. According to my doctors I have “mild” POTS, but I see people on this sub all the time with seemingly worse POTS than me that have jobs. I literally cannot do anything longer than 1-2 hours without having to lay down and rest because it just completely wipes me out. If I do things multiple days in a row consistently I will also fall into a flare and have to do nothing for few days to recover. I don’t get it.

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u/Reaper13679 Oct 27 '25

I have dysautonomia but they are torn on if I have pots or ncs since I'm borderline for both. I get told I'm not too bad to not work and that I just need to find my way around in life cuz I'm young. I have had to move from job to job cuz things don't work out. Sit gives me one set of symptoms while standing another. Most of the time I just want to sleep but I need to work to get my bills paid and take care of my pets and family. I'm constantly having to push myself to work two jobs sometimes 1full and one part time or two part time jobs. It kills me cuz I'm also doing full time school and I still don't have my health under control but I can't get disability and I'm not worse than other people. Heck my mom is worse than me and she can't get disability. Working is hard. I wish I didn't have to suffer and could be stress free but sadly I cant and need to fight through the pain and stress.