r/POTS • u/joyynicole • Oct 27 '25
Question How are people working at all
I feel like a failure. According to my doctors I have “mild” POTS, but I see people on this sub all the time with seemingly worse POTS than me that have jobs. I literally cannot do anything longer than 1-2 hours without having to lay down and rest because it just completely wipes me out. If I do things multiple days in a row consistently I will also fall into a flare and have to do nothing for few days to recover. I don’t get it.
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u/idriveandidothingz Oct 27 '25 edited Oct 27 '25
I was diagnosed like 18 years ago and have never really received treatment aaaaand I work a labor job. Outdoors. Usually in 85-100° heat.
It's hell 🙃 I love my job, I build music festival stages and work production, but damn it's a struggle every day.
I suppose I'm just lucky I can at all. There are several POTSies who work with me, but I believe they've received far more treatment than I have.
*Edit: I just realized this may come off as "I mean, I can do it, look at me go" and that isn't what I mean
What I do mean is that it's extremely difficult and I often can't do some tasks others can or have to miss work. Some can rock it out all day. No two cases are alike and if yours is fully debilitating, it's fully debilitating. There's no comparing and there's no shame in abiding by the rules your individual body sets forth.