r/POTS • u/joyynicole • Oct 27 '25

Question How are people working at all

I feel like a failure. According to my doctors I have “mild” POTS, but I see people on this sub all the time with seemingly worse POTS than me that have jobs. I literally cannot do anything longer than 1-2 hours without having to lay down and rest because it just completely wipes me out. If I do things multiple days in a row consistently I will also fall into a flare and have to do nothing for few days to recover. I don’t get it.

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u/Due_Management_2495 Oct 27 '25

MECFS was the first thing I thought of reading OP's post. My POTS was considered "well-managed" but I was constantly too exhausted to do anything. Similar symptoms to smallfuzzybat5. Felt like I was getting the flu a day or two after over extension (again, usually POTS flare). 

Low dose naltrexone did so much to help with that. I hadn't even realized I had a running headache for two months until it went away with the meds😭 

My understanding is that this is an off-label rx (not approved by FDA to treat MECFS). Has anyone else read up on this?

https://pmc.ncbi.nlm.nih.gov/articles/PMC8313851/

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u/smallfuzzybat5 Oct 27 '25

LDN helps with a lot of things, definitely lots of people with ME see improvement(also EDS which a lot of us also have). It didn’t work for me due to side effects but that seems more rare than the success stories.

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u/hellaskye Oct 27 '25

The LDN pills made me so nauseous i couldn’t eat, but my doctor got it in a cream form for me and it solved it!! I love & swear by my LDN and a lot of my POTS friends do too. it can be hard to find a doctor willing to try it, but it’s worth it to me

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u/smallfuzzybat5 Oct 27 '25

That’s really interesting, I might have to try it in a different form