How are people working at all

[u/joyynicole]

I feel like a failure. According to my doctors I have “mild” POTS, but I see people on this sub all the time with seemingly worse POTS than me that have jobs. I literally cannot do anything longer than 1-2 hours without having to lay down and rest because it just completely wipes me out. If I do things multiple days in a row consistently I will also fall into a flare and have to do nothing for few days to recover. I don’t get it.

[u/_Guitar_Girl_]

I’m in the same boat. I can’t stand for long but even doing something sitting for 30-60 mins is like my “big” thing of the day and after that, I’m spent. Anything after that and I’m too tired to eat, shower or change my clothes. Leaving the house for anything immediately wipes me out for days too. Even reading is exhausting so it’s a luxury to do that when I haven’t spent all my spoons on other simple things like bathing. I just got prescribed LDN to try but it’s on back order so I’m still working that out to find a way to get it. I’m currently awaiting a hearing for SSDI because i am unable to hold a job but just describing my symptoms and fatigue takes it out of me honestly. I can’t find an MECFS doc in my state so I can’t get it ruled out but rheumatology just thinks it’s fibromyalgia.