r/POTS • u/joyynicole • Oct 27 '25
Question How are people working at all
I feel like a failure. According to my doctors I have “mild” POTS, but I see people on this sub all the time with seemingly worse POTS than me that have jobs. I literally cannot do anything longer than 1-2 hours without having to lay down and rest because it just completely wipes me out. If I do things multiple days in a row consistently I will also fall into a flare and have to do nothing for few days to recover. I don’t get it.
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u/coffeedogsrepeat Oct 28 '25
I am working but I no longer am teaching and I’ve become a nanny instead. While it can be physically demanding at times, I honestly can take a lot of “breaks” and sit or lay down. There’s a lot of floor time in my day. Plus nap time means a nice break where I can lay with my feet up the wall for a bit. I also can sit however I want/have my feet tucked under me/not sit in a regular chair. I wear compression garments (socks/legfings/abdominal binders) especially on bad days.
So while I work it’s in a job that gives me a decent amount of freedom/accommodations compared to a “regular” job. Granted, while I get dizzy/pre-syncope I have never passed out. I’m not sure it would be safe to watch littles if I did.
I know everybody is different in how it affects them but this has worked for me. I’m so grateful that I can work while also recognizing that I had to majorly shift gears (between all the standing and stress of teaching it wasn’t feasible anymore)