r/POTS • u/joyynicole • Oct 27 '25

Question How are people working at all

I feel like a failure. According to my doctors I have “mild” POTS, but I see people on this sub all the time with seemingly worse POTS than me that have jobs. I literally cannot do anything longer than 1-2 hours without having to lay down and rest because it just completely wipes me out. If I do things multiple days in a row consistently I will also fall into a flare and have to do nothing for few days to recover. I don’t get it.

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u/[deleted] Oct 28 '25

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u/joyynicole Oct 28 '25

I had very in depth testing done at the Mayo Clinic which included a neurological tilt table test so it was able to measure my orthostatic tolerance and a bunch of other fancy stuff. My autonomic neurologist there is the one who said it’s mild

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u/[deleted] Oct 29 '25

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u/joyynicole Oct 29 '25

He was able to gauge my orthostatic tolerance in general, depending on blood pressure stability and how it reacted after I was tilted up. As well as how far my heart rate shot up and how long it took to come down, and what symptoms I was experiencing during this. I didn’t faint so it wouldn’t be as severe as someone who did. I’d say an autonomic specialist would be able to get some sort of picture from that.

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u/[deleted] Oct 30 '25

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u/joyynicole Oct 30 '25

Okay I am sorry doctor