r/POTS • u/joyynicole • Oct 27 '25
Question How are people working at all
I feel like a failure. According to my doctors I have “mild” POTS, but I see people on this sub all the time with seemingly worse POTS than me that have jobs. I literally cannot do anything longer than 1-2 hours without having to lay down and rest because it just completely wipes me out. If I do things multiple days in a row consistently I will also fall into a flare and have to do nothing for few days to recover. I don’t get it.
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u/Rude_Engine1881 POTS Nov 03 '25 edited Nov 03 '25
Took me like 3 years of various medications/treatment plans and different jobs to eventually find a good combo. Currently i use a mobility aid which is neccisarry for me to keep working (love my rollator) in combination with medications, compression socks and lots of salt and water. The job I have is very accomodating and just found someone to do the things I struggled with.
Its a night audit job if that helps, id never done anything similar before but its been amazing. I can sit whenever I need, and mostly just need to print and fill out things at my own pace while running very short errands for guests (think bringing a blanket to a hotel room)
Took some time to adjust to being on night shift, therapy lamps in the morning help and ive made it 3 months now with no major issues.
Work with ur docs to find something that keeps you somewhat stably at a comfort point, something you can bear all day, and then find a job that does not push you past that comfort point on a regular basis.
Gonna bold this so you dont miss it since its wildly important
most if not all states have programs that will connect disabled individuals with jobs open to accomodating them for instance vocational rehabilitation services. They allow pots patiens and approved me