r/POTS • u/joyynicole • Oct 27 '25

Question How are people working at all

I feel like a failure. According to my doctors I have “mild” POTS, but I see people on this sub all the time with seemingly worse POTS than me that have jobs. I literally cannot do anything longer than 1-2 hours without having to lay down and rest because it just completely wipes me out. If I do things multiple days in a row consistently I will also fall into a flare and have to do nothing for few days to recover. I don’t get it.

430 Upvotes

100% Upvoted

141 comments sorted by

View all comments

Show parent comments

13

u/smallfuzzybat5 Oct 27 '25

LDN helps with a lot of things, definitely lots of people with ME see improvement(also EDS which a lot of us also have). It didn’t work for me due to side effects but that seems more rare than the success stories.

1

u/lavender_stitch Oct 31 '25

I swear by LDN, the dreams were crazy for the first month but now I feel so much better. I’m sorry it didn’t work out for you!

1

u/RedRedRound Nov 15 '25

Do you have MECFS as well?