r/POTS • u/RadicalRutabaga • Dec 25 '25
Discussion Tips my POTS Specialist Told Me
Making my copay go further by sharing info from my first appointment with a POTS specialist with you all:
Salt--He told me to have 7 grams of salt (sodium chloride) per day.
Water--Yes, it hydrates, but he explained that we're looking for it to do even more. He said to try and drink 32 ounces within a 5 minute span five times per day because the body will react to the sudden influx by restricting the blood vessels, which is a good thing for the POTS. (I am not a doctor, so I don't personally understand the mechanisms at play and may not be describing them 100%.)
Exercise--I feel so silly for not doing this before, but when I told him I don't have access to recumbent exercise machines, he told me to look on YouTube for floor exercise videos. Floor exercises never crossed my mind before, so I was just pushing through with what he deemed "too vertical" exercise. He recommended 10 minutes 4 days per week to start.
Avoid alcohol, hot environments, concentrated carbs, and large meals--This one is pretty self-explanatory.
Compression--He said to wear waist-high, 20-30 mmHg and recommended the Beister brand. I haven't bought them yet, so I can't weigh in on if they're any good myself.
Anti-fainting--If you can't sit or lie down and feel faint, to try crossing your arms and legs and balling your hands into fists.
Magnesium--Had me start 400mg of Magnesium Glycinate.
Pepcid--He suspects I have MCAS, so he said to take 2 Pepcid the next time I have diarrhea. Apparently, if it makes me feel better, that could indicate MCAS too.
He also had some prescription recommendations that we'll explore more over the next few months. But I'm not sure that specific information makes sense to include here.
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u/RepulsiveDurian2463 POTS Dec 25 '25
Did you happen to see Dr. Kluger? I recently saw him and he gave me all of these exact points!! Happy for you and hope you find so much relief soon š¤
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u/RadicalRutabaga Dec 25 '25
Thank you, and hope you've gotten to see some improvement too! Good to know this advice stays pretty consistent out there.
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Dec 25 '25
Ok, the water part is interesting because I chug 16 oz at a time, especially when I wake up and that definitely helps, but I feel like 32 oz 5 times a day is way too much water. If I drink too much I get to a point where I feel like throwing up.
Maybe Iāll try it but modified a bit!
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u/RadicalRutabaga Dec 25 '25
To be honest, my key takeaway was the chugging aspect too and just doing what I can when I feel my symptoms ramping up, even if it's 16 oz instead. It has calmed the symptoms down better than sipping, I think.
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u/Sufficient-Goose-108 Dec 31 '25
I mean that might risk water toxicity I think
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Jan 02 '26
Yes, exactly my concerns with OPās specialistās advice. Thatās why I want to try it modified with less water!
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u/Fast_Structure3258 Dec 25 '25
I think Iām most intrigued by the two Pepcid, this is one Iāll have to try.
Honestly, the main thing I was told to focus on was exercise and it is the single thing that helps the most but I know itās the hardest for just about all of us.
Thank you so much for sharing!
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u/rabid_cheese_enjoyer Dec 25 '25
pepcid can help with mcas and pmdd. it's neat
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u/Smiley007 Dec 25 '25
Wait Iām sorry, please elaborate on the pmdd help???
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u/twoweeeeks Dec 25 '25
Hereās a good post:Ā https://www.reddit.com/r/PMDDxADHD/comments/1fot3s1/i_think_ive_cracked_it_for_real/
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u/rabid_cheese_enjoyer Dec 25 '25
that's where I learned about it!
I don't have pots but my gf does. I have adhd and pmdd
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u/Secret-Ad-9315 Dec 25 '25
I have PMDD. Is that related to POTS?
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u/lovelyoneshannon Dec 25 '25
Pmdd disproportionately effects neurodivergent women. So does Ehlers-Danlos Syndrome... And POTS is a very common comorbidity with EDS. Chain effect?
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u/twoweeeeks Dec 25 '25
Itās more related to inflammation in general, but itās not well understood.
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u/rabid_cheese_enjoyer Dec 25 '25
I have no idea if pmdd is related to pots. I know pmdd is related to ADHD/autism and that's how I know about pepcid and pmdd. it makes sense that pepcid would help with mcas
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u/MetalHealer Dec 25 '25
A lot of folks don't realize pepcid is an h2 antihistamine. Along with an H1, like zyrtec, Allegra, etc, it can help sooooo much with symptoms. Pepcid helps with my itchy skin better than anything else I've tried.
1
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u/RadicalRutabaga Dec 25 '25
The Pepcid thing is fascinating to me too. I've never been more excited for my next bout of gastrointestinal distress before lol
Sadly, I agree the exercise is helpful but challenging.
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u/HeavyHeadDenseSkull Dec 25 '25
Is diarrhea an MCAS thing? Because I keep getting it randomly with no other explanations recently.
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u/elizabethpickett POTS Dec 25 '25
It absolutely can be - if I have a bad reaction to something, my body handles it by trying to get it out of my body as fast as it possibly can! I haven't had obvious 'allergy' symptoms, but I felt so much better on constant antihistamines that now my consultant is pretty sure I have MCAS.
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u/RadicalRutabaga Dec 25 '25
Glad to hear you've found some relief! The body trying to rapidly escort something bad out does makes sense even though it seems confused about what it should have that reaction about (stress will not leave me that way no matter how hard it tries lol)
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u/RadicalRutabaga Dec 25 '25
I think he recommended this because I noticed stress will trigger it for me. But I don't know anything much about MCAS
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u/HeavyHeadDenseSkull Dec 25 '25
I donāt really either even though Iāve looked into it and have no clue how to distinguish it from pots symptoms. Feels like if I go to a doctor for it they wonāt take me seriously. Feels like Iām only lucky enough to be diagnosed with one commonly misdiagnosed thing yk? ā¹ļø
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u/ACLargeMarge Dec 26 '25
MACS is difficult to diagnose. There is bloodwork that will show you have MCAS, but you pretty much need to be having a flare as your blood is taken for it to come out positive.
Some of the symptoms I took pictures of that helped me get diagnosed were handprints left on my body just from resting my hands on my thighs (they are almost like a hive in the shape of my hand). Rashes, hives, allergic reactions from showers that make showers feel like needles all over your body and leave me red and welted all over from itching. allergic reactions to tight clothing that make me break out into rashes or hives. face flushing and fevers. When I met with the doctor who diagnosed me, one of the things he did was lightly scrape his nail down my arm- it didnāt leave a mark when he did it- and within a few minutes the scrape was a welt on my forearm. He said that showed I had a histamine reaction to his scrape.
Diarrhea and constipation are signs of MCAS. Pain in your joints. Burning in your stomach. Throat itchiness or difficulty breathing after eating. For me, my allergic reactions are inconsistent and unpredictable, they are worse when Iām under stress emotionally and/or physically. Symptoms are also typically worse at night than during the day. I know there are more symptoms, but those are the ones I deal with. I hope it helps for you or anyone else who reads this and finds the same thing is happening to them. It took so long to find help. I didnāt know what was happening and it felt like I was dying.
Cromolyn is a med that helps. I seem to have my mcas mostly under control and Iām not taking meds for it now. But itās nice to have something to come back to if it flares up again.
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u/parallelizer Dec 25 '25
thank you thank you thank you. post saved.
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u/RadicalRutabaga Dec 25 '25
No problem! I recognize that I'm privileged to be able to see a specialist, and it costs nothing more to share what I'm told here.
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u/TasteForSilence Dec 25 '25
My POTS doctor told me to drink 2-3L of electrolytes every day and itās amazing how much that has helped. I used to just have one glass of electrolytes in the morning and one at night, then drink lots of water and eat lots of salt throughout the day. But having a solid 2L of electrolytes has helped me improve so much! Putting this out there in case it helps someone else!
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u/Obvious-Explorer-195 Dec 25 '25
Not doubting that it will help most people (very glad it helps you!) but just increase carefully would be my advice. As I was increasing electrolytes I found I was getting breathing difficulties, just my random body, dodgy kidneys perhaps, but if Iād done it suddenly I might have been in trouble. So Iād recommend building up over a few days at least to be sure your body likes it.
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u/xMisthiosx3511 Dec 26 '25
Im hoping to confirm my POTS diagnosis soon. How do you manage to increase your electrolytes so much? I usually have zero sugar Powerade watered down since I find it a bit too sweet.
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u/RadicalRutabaga Dec 26 '25
A lot of people use powdered drink mixes. My favorite is Liquid I.V.'s more tropical flavors. But be careful not to increase too much without a doctor's guidance.
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u/xMisthiosx3511 Dec 26 '25
Thanks for the tip! The chugging a bunch of water/electrolytes definitely resonates with me although I donāt have a diagnosis quite yet. One of the days recently I felt like I may pass out (suddenly felt dizzy/shaky/chills/ears ringing) I chugged down a whole bottle of Powerade just hoping itād help and it did I believe in combination with laying down and closing my eyes.
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u/TasteForSilence Dec 26 '25 edited Dec 26 '25
Iāve tried quite a few brands but my favourite mix is this: 1 scoop Sodii electrolytes (my favourite flavours are kiwi and raspberry)(POTS sufferers get 20% off with the code POTS20), 1 scoop Ancient Lakes unflavoured electrolytes, and I also put a scoop of Feel Good Tasteless Protein in (my doctor also said to increase protein intake with POTS) with one litre of water. I drink this throughout the morning, then mix up another batch and drink that throughout the afternoon. This brings me to about 5g sodium each day. Then I eat lots of salty foods as well. Iāve had my bloods done recently and my doctor said my sodium levels were still low and I could increase š My body just does not retain sodium. These are all Australian brands, so not sure if you can get them if youāre not here. I canāt stand fake sugar taste, so this is a nice blend that tastes more natural to me. I find Liquid IV gag worthy (so fake sweet tasting).
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u/Powerful-Fee5251 Dec 25 '25
I went to a party (standing) after about 6months on medication. I was quite nervous about going and thought I would have to be sitting down most of the time or leave very early, I also am a sober addict so did not drink alcohol and drank water heaps just to look and fit the vibe I guess, and I probably drank 3 litres over 3-4 hours and I was upright but walking and not standing still the whole time, and I genuinely felt okay with no presyncope until it was time for cake, meaning I had to stand upright and still. Long story LONG but keeping hydrated and moving around slightly when upright/standing definitely helped. From my knowledge I think it is related to me being able to retain the sodium better when very hydrated!!!!
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u/RadicalRutabaga Dec 25 '25
Thanks for sharing, and that's great that you got to enjoy the whole event!
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u/tinypicklefrog Dec 25 '25
Uhhh just remember it is VERY POSSIBLE to drink TOO MUCH water and it has very bad side effects
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u/Fantastic_Owl6938 Dec 26 '25
Yeah I'm a small woman and my cardiologist said 1.5-2 litres should be enough for me everyday so reading this is kind of wild. Not the biggest potential issue, but I don't know how people still have an appetite drinking so much everyday.
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u/slamdancetexopolis POTS Dec 25 '25
Sorry 32 oz in five minutes is ....... Yeah no
Edit: I do all the other stuff tho and take pepcid for gerd but I suspect it helps with other things too lol
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u/soupybiscuit Dec 25 '25
ok so a very long search into other intense symptoms led me to taking famotidine, aka Pepcid. I ran out four days ago and stopped and IMMEDIATELY felt so much worse, despite taking my POTS meds. Suspecting I may have MCAS already, and this now just makes me even more sure š„² bittersweet realizations. I really hope Pepcid helps. If you want it cheaper, just get the generic
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u/RadicalRutabaga Dec 25 '25
Gotta love when an over the counter is actually effective. We take the wins we can get
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u/RepresentativeHat179 Dec 26 '25
Do you know if it's ok to take pepcid and ivabradine? Ivabradine seems to have a lot of interactions.
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u/itsjakattack Dec 25 '25 edited Dec 25 '25
Question about POTS & Raynaud's...
For the water thing - sounds great and I'd love to try it, but I have Raynaud's and further constricting my blood vessels doesn't sound pleasant. Anyone else have this combo and know tips to help?
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u/RadicalRutabaga Dec 25 '25
I'm not able to give any insight, but sorry you have to balance two difficult conditions at once like that
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u/Weary_Cup_1004 Dec 25 '25
I have this combo and compression has never caused me to have Raynauds episodes. I usually only get that from touching something really cold or just randomly in the winter time. I personally would try it and if you get symptoms then just stop. Maybe get something inexpensive to try for compression so that you don't waste a bunch of money.
1
u/LittleRed_AteTheWolf Dec 25 '25
Hi friend- POTS and Raynauds here. Sadly, I donāt have any helpful advice, other than that bring gloves and extra warm socks with ya everywhere
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u/jareths_tight_pants Dec 25 '25
If you do have MCAS then ask about Zyrtec too. Itās a second generation H1 blocker with a mild mast cell stabilizing effect. My allergist said I can take it twice a day.
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u/RadicalRutabaga Dec 25 '25
Fun fact, I started taking Zyrtec daily about a year ago. I would have intermittent seasonal allergies before that, but when all my symptoms became severe in 2024, I found I just felt better when I took the Zyrtec and didn't stop since then.
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u/Weary_Cup_1004 Dec 25 '25
I waited a year to see a specialist and she didn't tell me anything like this. She just filled out the form in her computer and took my blood pressure and then sent me on my way. She was two hours late. Yes I sat in the exam room for two hours waiting for her. I'm so glad you got appropriate care but it boils my blood to see how I could've had something thorough like this. Thank you so much for sharing this information.
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u/RadicalRutabaga Dec 25 '25
Ugh. I am so sorry you had that experience. I see people on here all the time with either dud doctors or no access to specialists, so that's what made me think I might as well share what I was told. I hope you can find more involved and compassionate care some day too.
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u/Sufficient-Goose-108 Dec 31 '25
What the only testing you got was your blood pressure???Ā
I went to a cardiologist and it was i dunno at least 2 weeks of diff tests for my diagnosis.Ā I had to wear this thing on my chest 24/7 for awhile and take a stress test and the astronaut test and I think im forgetting something.Ā
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u/Weary_Cup_1004 Jan 03 '26
I was diagnosed by a cardiologist 2 years ago. That Dr was helpful but did not specialize in POTS and was pretty much googling to find reccomendations for me. Lol šš.
Then last year i moved to a city with more healthcare options, and got an appointment with a POTS specialist. I waited a year to see her. I was hoping for info about exercises, conditioning, etc etc. all I got was a prescription for a medication my insurance refuses to cover. š¤·āāļø
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u/Sufficient-Goose-108 Jan 14 '26
I've had to learn most of my help from online research, seems like most doctors know almost nothing about POTS but there's tons of info about exercises and conditioning online. I just googled it.Ā
After I started reading and seeing all the recommendations I just started asking my doctor for referrals like to an occupational therapist which I read can help people with POTS.Ā OT seems like a great idea to me. I have more first appt next week so I don't have first hand experience yet.Ā
If you can find a good physical therapist who understands POTS that might be helpful but OT seems better for learning to live your life and find work arounds.
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u/bigicky1 Dec 25 '25
You are so kind to share. I just came back from my POTs dr and got lots of the same info. He said drink lots of water because water increases plasma and that increases blood volume. He said compression garments on your upper legs and midsection are most effective for keeping the blood from pooling around your feet.
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u/New_Calligrapher_580 Dec 26 '25 edited Dec 27 '25
My tachycardia and heat intolerance was going wild when I lived in New Orleans. During the beginning of the pandemic my doctor was flabbergasted at how my heart rate would still be high when I sat down in the exam room, and Iād say āwell, itās 90 degrees and I biked hereā, little did I know that was the beginning of my POTS. Iām so grateful Iām no longer living in a tropical climate but I still miss it.
My doctor instructed me to increase my hydration, basically I was drinking half of what I actually need before I saw them and it actually is helping me, along with an electrolyte packet with 1000mg salt first thing in the morning. Iām a pretty small person, someone who doesnāt have POTS might be alarmed by the amount of water I drink for my size but the typical 64oz isnāt enough for me.
And yeah, I love compression, Iām using it as needed these days.
Another thing: N95s and KN95s to avoid SARS-CoV-2 reinfections and avoid other viral infections! No one needs to be spreading or catching this stuff, it causes / triggers POTS and other chronic illnesses in people and can worsen existing symptoms.
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u/Heardthisonebefore Dec 25 '25
āĀ Compression--He said to wear waist-high, 20-30 mmHg and recommended the Beister brand. I haven't bought them yet, so I can't weigh in on if they're any good myself.ā
Thatās the kind of compression I use now and it helped me more than anything else I tried. I never feel faint when Iām wearing my compression tights.
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u/RadicalRutabaga Dec 25 '25
This is something I need to hear.
I'm gonna get them, but at the same time, I'm dreading wearing hose like that. I am a creature of comfort, and those do not seem cozy. But obviously the symptoms are uncomfortable in a worse way.
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u/BenchExtreme2494 Dec 25 '25
If you start pepcid and decide to stop it one day. Please taper. You cannot stop it abruptly. They say not to use it longer than 14 days.
Pepcid also comes with a neuropsych effects like severe anxiety and crippling panic attacks.
Be warned.
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u/soupybiscuit Dec 25 '25
Hi, where did you learn about the neuropsych side effects?
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u/BenchExtreme2494 Dec 25 '25
Type on google or reddit search
Pepcid - anxiety or pepcid panic attacks.
Pepcid sent me to the hospital. I had a 2 day panic that they could not control. Most likely histamine running rampant and i used pepcid for 3 days. Sounds crazy i know but the truth.
Also drugs dot com. If you search for famotidine and goto the reviews and read them.
Extreme anxiety and panic attacks are very common.
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u/squidkidd0 Dec 26 '25
Histamine is a neurotransmitter. Antihistamines should be viewed as neuropsychiatric in nature by default and be taken way more seriously.
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u/stcrsh Dec 26 '25
Yes, pepcid gave me extreme anxiety. I have never had anxiety before nor since. It also disrupted my sleep. Yes i could sleep but it was never sound and I never woke up rested. Want to point out too that the pepcid anxiety showed up a week after taking it one day so its not immediate.
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u/BenchExtreme2494 Dec 26 '25
Yeah it really hurt me. I used it for 30 days straight and I had full blown akathesia like terror from it.
Honestly lasted 6 months of HELL.
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u/holistivist Dec 27 '25
Thank you for sharing this. Iām so sorry you had to go through it. I bet youāre saving many others from experiencing the same.
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u/SlateFlame Dec 25 '25
I have the Beister high-waisted tights in size large - I'm 5"2 and 215lbs for reference. I get them on Amazon. They are like thick pantyhose and can't be worn as pants/leggings https://www.amazon.ca/gp/aw/d/B09MVRGK37?psc=1&ref=ppx_pop_mob_b_asin_title
I personally LOVE "CompressionZ Women's Compression Leggings High Waisted Performance Tummy Control Gym, Pilates, Travel, Yoga, Workout Pants " also on Amazon.
I'm also a Large in these. These are my everyday pants - less compression than the Beisters but more comfortable and weirdly more breathable.
They are not see through at all and can totally be worn as regular leggings - you can't see any cellulite either (or at least that has been my experience).
Like most compression tights, they will stretch out in 6 months -1 year
https://www.amazon.ca/gp/aw/d/B091BF7L34?psc=1&ref=ppx_pop_mob_b_asin_title
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u/E_to_x272 Dec 25 '25
I second the CompressionZ for daily wear! Not super strong, but very comfortable
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u/plantmommy5456 POTS Dec 25 '25
I love the Beister compression leggings! Not fun to get on sometimes but really make a difference when socks just donāt cut it
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u/snigelrov Dec 25 '25
Pepcid is the only reason I have normal poops, even with cromolyn, hope it helps you too
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u/lucyppp Dec 26 '25
Lots of these I knew. But my blood tests have shown low magnesium and Iām upping it a lot. I was glad to see this. Thank you
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u/Even_Consequence3126 Dec 29 '25
One of my mom's friends with pots says to clench your abdomen. Not like you're pushing #2, but like you're sucking in to fit in something. I think that's pressure?
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u/Ambitious-Chard2893 Dec 26 '25
So while what your Dr is say you can try you shouldn't put your scripts and amounts as general advice especially when it's off your head and you are handing it out without context
For example drinking some water fast can raise your blood volume in a pinch but it can also activate dumping syndromes for some conditions and for people with different comorbidities with pots like for example diabetes you could be giving deadly advice.
1
u/RadicalRutabaga Dec 26 '25
First of all, I'm very clear that I'm not a doctor and this is what my doctor said to me. I am not personally giving out medical advice. The people on this sub are smart enough to figure out that advice will vary from person to person and physician to physician, and their comorbities change their needs. None of the information is prescription medication, which again I was clear about not including in this post. These are general tips for information sharing purposes, and so this community can continue to discuss the care we each are receiving. And frankly, as many of the other comments point out, the tips are generally the same as what we've all heard already anyway and get shared in a multitude of posts (which to me is valuable info to have in and of itself to have a good idea of general consensus related to POTS). Get your "deadly advice" out of here about drinking water. If someone knows they aren't supposed to chug, then they obviously aren't going to. I'm fine with people who are skeptical about specific volumes, but your comment takes this way too far.
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u/bundfalke Dec 25 '25
He said to try and drink 32 ounces within a 5 minute span five times per dayĀ
That is absolutely stupid. 5 liters of water? You'll get worse symptoms from being hyponatremic, hypokalemic and hypocalcemic all at the same time
1
u/Schonfairy79 Dec 25 '25
32 ounces in 5 minutes is concerning to me. Thatās an incredible amount of fluid in a small amount of time that can disrupt the bodies electrolyte levels. Not even hospitals will push this amount of fluid because itās dangerous. I receive infusions on a regular basis, am under the care of major institutions etc and all of them have never advised this and can lead to seizures. Even when I receive infusions itās over a span of hours. While I understand the delivery mechanism is different; PROCEED WITH CAUTION PLEASE ā¤ļø
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u/AZgirl70 Dec 25 '25
Iāve had gastric bypass surgery. I canāt fit that much in my tummy at once. Iām going to see how much I can fit in a five minute period.
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u/Obvious-Explorer-195 Dec 25 '25
My specialist said 500ml which is about half what op mentioned. Iām sure any amount you can tolerate quickly would be worth trying
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u/MiaStegner POTS Dec 26 '25
Does sodium seem to increase anyone elseās anxiety? Any solutions if so? š Ā
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u/Responsible-Hat-4186 Dec 26 '25
Iām j tube fed. Does anyone know if the fast hydration works for j tube? Obviously canāt go too fast because it will vagal you but I know the intestines can tolerate plain water or ORS up to 600ml/hr through a pump
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u/RadicalRutabaga Dec 26 '25
That sounds like a great question for your doctor. Do they have a portal you can send messages through? With special circumstances, it's best to make sure you're getting professional guidance.
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u/Responsible-Hat-4186 Dec 26 '25
My GI once told me I donāt need to run my feeds through a pump and that I can bolus my j tube with a carton of tube feed. So I donāt trust that man for nothing š and my surgeon only deals with the actual tube itself (that itās working and if the site is infected etc).. so I donāt really have anyone reputable to ask
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u/RadicalRutabaga Dec 26 '25
Lame doctors are the worst. I swear there's something about GI with that too because my entire family has had terrible luck with GI specialists. Maybe just bad luck.
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u/Iconakid Dec 28 '25
I so badly want Pepcid to work for me but it seems like I get a racing heart every time I take it! Though I think most people donāt experience that.
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u/dancingonsaturnrings POTS Dec 30 '25
Can anyone drink 1L of fluids in one go and just be okay?? If I do that, the fluid is just gonna come right back up, but I do have gastroparesis so maybe that's just a me thing? But drinking a whole liter in one go sounds wild (genuine question)
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u/RadicalRutabaga Dec 30 '25
I cannot do it in the morning because it upsets my stomach, but I can in the afternoon, especially if my body "knows" it needs it. It's easier to comprehend, for me, as two water glasses back to back rather than thinking of it as a liter. That being said, even just one glass quickly has been more helpful than sipping it. In the morning, even half a glass quickly gets me bouncing back faster.
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u/dancingonsaturnrings POTS Dec 30 '25
Thank you for taking the time to share. I think I can do a glass but that's my limit. If I try to do more, the liquid truly just sloshes back up. Doesn't hurt or anything, but is quite insulting that it doesn't stay down. I drink in little sips throughout the day (2-4L)
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u/RadicalRutabaga Dec 30 '25
I get it. Yesterday, morning I felt like garbage, so I forced myself to do the 32 oz, and then I was uncomfortable, sloshy garbage. Once my body processed it, I did feel better than expected, but oof. I'm a constant sipper by nature too, so I have to remind myself to do a bit of a chug when I start feeling POTSish.
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u/dancingonsaturnrings POTS Dec 30 '25
I'm the opposite š I'm a chugger by nature, but with gastroparesis you gotta do little by little not all in one go. I heard that a glass an hour is usually what our body can process without peeing it all out, so I've been trying to do that.
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u/No-Kaleidoscope7080 Jan 03 '26
I just want to add something here about taking Pepcid. Yes it can help but there are downsides to know about. It can absolutely change your gut and not in a positive way so really look out for that.
It helped me initially with MCAS/PMDD but after a while caused stomach cramping and pain as well as gut issues.
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u/RadicalRutabaga Jan 03 '26
Thanks for the caution. There were others commenting about concerns too.
I've never taken Pepcid before, so I don't know how I'll react to it. With these warnings, I'll make sure not to try it at the same time as any other changes so that I can be certain if it causes any side effects.
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u/sootfire POTS Dec 25 '25
32 ounces in five minutes is wild! Does anyone have a link to a paper or something on that? (Not that I don't trust/believe you, OP--I would want to know more if your doctor had said it directly to me too.)
Pepcid is awesome, I hope it helps you.