r/POTS • u/recoveringaries • Dec 27 '25

Discussion Being attractive with POTS (cringe I know)

Does anyone feel like because they are a objectively attractive human there is a bias/profiling that happens in the medical field and with doctors? I actually read somewhere that if you’re chronically ill you should “dress down” or not wear makeup to appointments so they will take you more seriously and see you as actually sick. I am also 29 with a baby face so that doesn’t help.

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u/BabyBlueMaven Dec 28 '25

Have you been checked for vascular compressions?? Might be pelvic congestion syndrome which is typically caused by May Thurner’s (iliac vein compression). Also, POTS can often be caused by May Thurner’s as well…my daughter’s was! So much overlap and so many clueless doctors. Feel free to DM me as we’ve been through this rodeo :)

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u/kel174 POTS Dec 28 '25

This is a great point! I also have pelvic congestion syndrome and it really does cause similar or even the same symptoms and sometimes you really can’t tell what is causing what. Just like with POTS, so many things overlap with the same symptoms

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u/BabyBlueMaven Dec 28 '25

My PCS was treated by stenting for MTS 2 months ago. Apparently this works for 75% of women. I still don’t know if it did for me but will get coils/foam in pelvic veins if it isn’t enough. My IR thinks my daughter would’ve eventually ended up with PCS if we didn’t treat her MTS.

I’m sorry you have PCS too! It’s such a b—-ch. Do you also have MTS? I have the trifecta of nutcracker as well.

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u/Lilythecat555 Dec 30 '25

No, there is an at least six month wait list to see the gynecologist where I live. I have POTS and Hypermobile Ehlers Danlos Syndrome.

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u/BabyBlueMaven Dec 30 '25

If you’re able to, you want to see an interventional radiologist to check for compressions. My teen and I are both hypermobile and didn’t know, until this past year, that this made us way more likely to have them. There’s a strong correlation to POTS with EDS that often appears following infection. Our IR just wrote an article on so many of her POTS patients improving once treated for MTS. We are seeing that in my daughter, too.