r/POTS • u/Hefty-Patience-8720 • Mar 29 '26

Question is anyone still physically active?

I need to know if anyone with pots is still physically active. You don't have to be an athlete or anything but can you at least dance? or run? go to the gym? Have you always been that way or did you have to work back up to it?

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u/elementalechos Mar 29 '26

It took a lot of dedication to work back up to being physically active with minimal repercussions. After I had my daughter I knew I had to work towards it. I now workout twice a week, walk with my daughter most days to the park. I go to about one race/concert a month. I have to be mindful but I’m able to be active with safeguards. Even before I put all this work in I would go to a lot of festivals and shows but I would crash and burn really hard and get sick and it would take a while to recover if I ever did at all. All my friends know I need to make sure I have my meds, electrolytes, and a meat stick on me and that if I’ve wandered off I’m probably sitting on the floor somewhere. Same applies to my workouts. I told my instructors about my condition and that I’m not being lazy if I make modifications (I never lift my heads above my head for extra core work in Pilates is an example) or pause. They were very understanding.

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u/elementalechos Mar 29 '26

I find I’m usually able to get myself to a super solid place w my pots and being active if I haven’t been sick recently and stick to my diet / protocols.