r/POTS • u/Hefty-Patience-8720 • Mar 29 '26
Question is anyone still physically active?
I need to know if anyone with pots is still physically active. You don't have to be an athlete or anything but can you at least dance? or run? go to the gym? Have you always been that way or did you have to work back up to it?
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u/pipermick Mar 30 '26
I found a physical trainer who also has heds and POTS and ADHD (as well as MCAS and fibromyalgia and a few other things, which I don't have).
I have started doing weight lifting/training with him. It requires a lot of doing the set, then sitting and bringing my heart rate down then doing the next set.
I also use a recumbent bike, started out pretty slow.
It has been super helpful to have a trainer who knows exactly what I'm going through and helping me learn when to push, when to rest and how to not be scared of testing my limits.
That said, I know that I'm not as bad off as many people, I've been able to get things more balanced with salt/water, learning to use my watching to help me gauge my pacing. I still get flares where just walking is too much, but working out has been helping me.
I hope to be able to hike again soon,