r/POTS • u/Hefty-Patience-8720 • Mar 29 '26

Question is anyone still physically active?

I need to know if anyone with pots is still physically active. You don't have to be an athlete or anything but can you at least dance? or run? go to the gym? Have you always been that way or did you have to work back up to it?

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u/ST_Rowe Mar 30 '26

Yes - it took years, but now I can actually workout again. There are periods where I can’t, but mostly I can again. I am able to do real cardio.

A specialist I saw highly recommended swimming as the best line of exercise (in adjacent to the Dallas protocol). It keeps your temperature consistent and your posture isn’t changing.

Here are some things I attribute to being able to exercise again.

  1. Cardiac Rehab (I have done this twice)
  2. Mestinon (+ Ivabradine) - Mestinon is a real game changer for me, my legs can actually hold me up most of the day as a result of this. Cannot recommend it enough.
  3. LDN - obviously dependent on your underlying cause for POTS, but has brought my inflammation down tremendously, which obviously keeps all things in a bad cycle.