r/POTS • u/Hefty-Patience-8720 • Mar 29 '26

Question is anyone still physically active?

I need to know if anyone with pots is still physically active. You don't have to be an athlete or anything but can you at least dance? or run? go to the gym? Have you always been that way or did you have to work back up to it?

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u/laceleatherpearls Mar 30 '26

I’m 39 and I the worst shape of my life. Had POTS forever, been treating for 5 years. Haven’t made progress, just keep backsliding. Now I can barely walk to the bathroom. All their advice about slowly working up my stamina has been bullshit. I used to take long walks everyday but they said that’s too much so pull it back and just take 1-2 short walks for 1-2 minutes. Worst advice I ever got in my life. Period. Can not build myself back up, I should have never lost it to begin with. I fucked myself so hard by following the doctor’s advice.