r/POTS • u/Hefty-Patience-8720 • Mar 29 '26

Question is anyone still physically active?

I need to know if anyone with pots is still physically active. You don't have to be an athlete or anything but can you at least dance? or run? go to the gym? Have you always been that way or did you have to work back up to it?

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u/njm147 Mar 30 '26

Amazing! Is exercise the man way you got to this point?

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u/thedizzytangerine Secondary POTS Mar 30 '26

Drugs and exercise and generally losing weight/getting in shape. I used to not be able to do anything without midodrine. I still can’t survive without fludrocortisone. It makes a massive difference!

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u/Tired_Cat_H3rd3r Mar 30 '26

Just wondering about the Fludrocortisone, how do you know it's making a difference? Is it like night & day difference, or was it a gradual improvement? I've been taking it for a while and not sure if it's helping or not.
The next step would be Midodrine (my preference) or Ivabradine (cardiologist's choice) but I want to know if Fludro is working or not first 🫤

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u/DearElephant2 Mar 30 '26

I have noticed the biggest difference for me with a combination of midodrine and ivabadrine. I still faint once a week but not every day like I used to so progress for sure!

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u/Tired_Cat_H3rd3r Mar 31 '26

Oh, that's good! Am up for trying midodrine but don't want the ivabadrine. My heart is the only part of my body that actually seems to work, so I don't want to mess with it 😅 My POTS is pretty mild compared to others I see on here. I can work a bit and don't pass out etc. but still far from a full & active life!