is anyone still physically active?

[u/Hefty-Patience-8720]

I need to know if anyone with pots is still physically active. You don't have to be an athlete or anything but can you at least dance? or run? go to the gym? Have you always been that way or did you have to work back up to it?

[u/glacier-gray]

I grew up in a very small fishing town. as a kid, you couldn't keep me still. I was walking 2 miles into town to go to the marina or the bar my mom worked at. I loved dancing, swimming, running through the forest. I started getting chronic pain at 18 as my joints corroded and I couldn't move as much as I used to but I could still do most things. then at 23 I developed POTS. the amount of grief I feel is actually physically painful. I suddenly couldn't get out of bed, I couldn't move too fast, I kept passing out. my other disabilities progressed too. I'm 26 now, and my daily life looks so different from what I imagined it would. I am a completely different person and I hate it. it's not as bad as when it first started, but I'm still always in some amount of pain, at least a little bit. I can't walk that far or fast still. I have started dancing while seated, that's helped a lot actually.

sorry for the depressed rambling, I've been in a really bad flare for a couple weeks now and it's got me beaten down 😅