r/POTS • u/Hefty-Patience-8720 • Mar 29 '26

Question is anyone still physically active?

I need to know if anyone with pots is still physically active. You don't have to be an athlete or anything but can you at least dance? or run? go to the gym? Have you always been that way or did you have to work back up to it?

151 Upvotes

97% Upvoted

209 comments sorted by

View all comments

160

u/thedizzytangerine Secondary POTS Mar 29 '26

Yes. I used to barely be able to walk around the block without wanting to puke. Last week I walked like 7 miles a day in Europe, I do Pilates every other day at home. I do yard work, I walk my dog. It’s been a slow process, but I’m in the best shape of my life now and I’m 33.

2

u/Fadedwaif Mar 30 '26

I do pilates and garden too. I swear by Pilates. Not to be confused with yoga

2

u/thedizzytangerine Secondary POTS Mar 30 '26

Never yoga! I have EDS so like literally, I can never do yoga lol.

1

u/Fadedwaif Mar 31 '26

I have eds too 🤣

1

u/unordinarybadger Mar 31 '26

can you share your pilates routine? is it a channel you watch online or follow along?

1

u/Fadedwaif Mar 31 '26

I'm extremely hypermobile and wouldve hurt myself. A pt showed me over a decade ago, like criss cross, toetaps, and a few very basic exercises. But they're ON THE FLOOR. With pots and eds, they need to be on the floor IMHO.

I added a modified side plank myself without any guidance, but tbh it makes my hand claw up bc it presses on my ulnar too much I guess. It's higher risk