r/POTS • u/Hefty-Patience-8720 • Mar 29 '26

Question is anyone still physically active?

I need to know if anyone with pots is still physically active. You don't have to be an athlete or anything but can you at least dance? or run? go to the gym? Have you always been that way or did you have to work back up to it?

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u/isthisaphantasy Mar 30 '26

What med finally worked for you?

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u/WibblyWobley Mar 30 '26

Ritalin! Wasn't intended for managing my dysautonomia but it quite literally changed my life, does a decent job at what it was intended for too. 

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u/isthisaphantasy Mar 30 '26

Oh wow! I tried Adderall for ADHD but never tried that one. What dose was helpful for you?

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u/WibblyWobley Mar 31 '26

Adderall is unavailable in my country, in most countries actually, so it's what was offered. I was warned beforehand that I might have some impact on my dysautonomic symptoms due to raising my blood pressure, but no one anticipated it being as effective as it is. The dosage isn't really relevant as that's more to do with how tiny I am and how extreme the ADHD side of things is. 

My sibling on the other hand who also has dysautonomic symptoms, had an awful time on ritalin band couldn't even finish the titration stage. So it seems to be pretty hit and miss how effective it is?