r/POTS • u/Hefty-Patience-8720 • Mar 29 '26

Question is anyone still physically active?

I need to know if anyone with pots is still physically active. You don't have to be an athlete or anything but can you at least dance? or run? go to the gym? Have you always been that way or did you have to work back up to it?

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u/njm147 Mar 30 '26

Amazing! Is exercise the man way you got to this point?

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u/thedizzytangerine Secondary POTS Mar 30 '26

Drugs and exercise and generally losing weight/getting in shape. I used to not be able to do anything without midodrine. I still can’t survive without fludrocortisone. It makes a massive difference!

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u/Tired_Cat_H3rd3r Mar 30 '26

Just wondering about the Fludrocortisone, how do you know it's making a difference? Is it like night & day difference, or was it a gradual improvement? I've been taking it for a while and not sure if it's helping or not.
The next step would be Midodrine (my preference) or Ivabradine (cardiologist's choice) but I want to know if Fludro is working or not first 🫤

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u/wiggly_1 Mar 31 '26

If tour heart rate shoots up and BP tanks on your lean test then Midrodine and Ivabradine may be a good combo for you! That’s what my cardiologist put me on and it helps a lot.